Mobile Application for Celiac Disease Patients' Wellness and Support
Mobile Application for Celiac Disease Patients' Wellness and Support
复制标题
乳糜泻患者健康和支持的移动应用程序
DOI：
10.1007/978-3-030-49289-2_2
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发表时间：
2019
期刊：
影响因子：
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通讯作者：
Verónica Burriel
中科院分区：
文献类型：
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作者：
S. Altamirano;G. Thorsteinsdottir;Verónica Burriel
乳糜泻影响估计1%的人口。唯一现有的治疗方法是严格的无麸质饮食，但有无数方面的管理疾病，影响CD患者和那些接近他们的生活方式。本研究的目的是设计、开发和测试一个移动的应用程序的原型，以促进CD患者的健康和支持。拟议的应用程序的目的是作为一个平台，为CD患者和成员从他们的社交圈，以帮助分享一般和具体的信息，四个生活方式方面：社会，情感，食物和健康。该应用程序从社交圈的角度帮助特定CD患者管理无麸质饮食。从22名参与者中收集了对应用程序可用性的看法，并通过USE问卷进行了分析。调查结果报告了对原型的总体满意度，并为后续版本收集了有用的见解。这种循证应用的一般预期受益是改善CD患者的生活质量，因为他们的社交圈充分了解疾病及其潜在并发症的管理。
Celiac disease affects an estimated 1% of the population. The only existing treatment is a strict gluten-free diet but there are myriad aspects of managing the disease that affect the lifestyle of both the CD patient and those close to them. The goal of this study was to design, develop and test a prototype of a mobile application to promote wellness and support for individuals with CD. The proposed application’s aim is to serve as a platform for CD patients and members from their social circle, to help with sharing general and specific information about four lifestyle aspects: social, emotional, food, and wellness. The application aids with the management of a gluten-free diet from the social circle perspective for the specific CD patient. Perceptions towards the usability of the application were gathered from 22 participants and analyzed via a USE questionnaire. The results from the survey reported overall satisfaction of the prototype and useful insights were gathered for subsequent versions. The general expected benefit of this evidence-based application is improved quality of life for the CD patient due to their social circle being well informed about the management of the disease and its potential complications.