Negative stereotypes, fear and social distance: a systematic review of depictions of dementia in popular culture in the context of stigma.

Negative stereotypes, fear and social distance: a systematic review of depictions of dementia in popular culture in the context of stigma.
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DOI:
10.1186/s12877-020-01754-x
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发表时间:
2020-11-17
期刊:
影响因子:
4.1
通讯作者:
Purwaningrum F
Purwaningrum F
中科院分区:
医学2区
文献类型:
--
作者:
Low LF;Purwaningrum F

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文学、电影和新闻媒体反映并塑造了对痴呆症的社会认知,进而影响了痴呆症的耻辱感。本文的目的是系统回顾文学、电影、大众媒体和社交媒体中关​​于痴呆症的描述和框架的论文,以更好地理解与痴呆症相关的文化耻辱。对电子数据库进行了系统搜索,结合了与痴呆症、流行文化和表征相关的短语以及与痴呆症和耻辱相关的短语。我们检索了科学英语论文,其中包括对流行文化(即电影和电视、文学、新闻、社交媒体和语言)中痴呆症的表现或描述的原始分析。包括 1989 年至 2018 年发表的文章。检索于 2017 年 12 月进行,并于 2019 年 1 月更新。进行了归纳主题综合。初始样本为 37022 篇,共纳入 60 篇文章。痴呆症几乎总是与衰老联系在一起,并且常常与阿尔茨海默病等同。痴呆症的常见框架是生物医学——痴呆症涉及大脑退化,目前尚无治愈方法;自然灾害或流行病——痴呆症是一种压倒人类的自然力量;和活死人——痴呆症患者失去了大脑、记忆、思想,从而失去了人格和人权。有一些对痴呆症进行更积极描述的例子,包括表达爱和个人能动性以及经历个人成长。通常与痴呆症相关的感受是恐惧、羞耻、同情和内疚,而描述往往会导致社交距离感。流行文化中对痴呆症的描述与负面形象和感受以及痴呆症患者和非痴呆症患者之间的社会距离有关。这些对应于公众和痴呆症患者所经历的痴呆症耻辱。需要进一步研究文学、新闻和社交媒体对痴呆症耻辱感的影响,这些文化媒体可以用来减少耻辱感。
Literature, film and news media reflect and shape social perceptions of dementia which in turn impact on dementia stigma. The aim of this paper is to systematically review papers on the depiction and frames for dementia in literature, film, mass media and social media in order to better understand cultural stigma related to dementia. A systematic search of electronic databases was undertaken combining phrases relating to dementia, popular culture and representations, and phrases relating to dementia and stigma. We searched for scientific English language papers which included original analysis on the representation or depiction of dementia in popular culture (i.e. in film and television, literature, news, social media and language). Articles published between 1989–2018 were included. The search was conducted in December 2017 and updated in January 2019. Inductive thematic synthesis was undertaken. A total of 60 articles were included from an initial sample of 37022. Dementia was almost always depicted in conjunction with ageing, and often equated with Alzheimer’s disease. Common frames for dementia were biomedical - dementia involves the deterioration of the brain for which there is no current cure; natural disaster or epidemic - dementia is a force of nature which will overwhelm mankind; and living dead – people with dementia lose their brains, memories, minds and consequently their personhood and human rights. There were examples of more positive depictions of dementia including expressing love and individual agency and experiencing personal growth. Feelings commonly associated with dementia were fear, shame, compassion and guilt, and depictions often resulted in a sense of social distance. Depictions of dementia in popular culture are associated with negative images and feelings, and social distance between people with dementia and those without. These correspond to dementia stigma in the public and as experienced by people with dementia. Further research is needed into the impact of literature, news and social media on dementia stigma and these cultural mediums might be used to reduce stigma.
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