Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities
Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities
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DOI：
10.1111/jir.12769
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发表时间：
2020-08-18
影响因子：
3.6
通讯作者：
Fenning, R.
中科院分区：
文献类型：
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作者：
Neece, C.;McIntyre, L. L.;Fenning, R.
背景 COVID-19 大流行给有发育迟缓幼儿的家庭带来了挑战。除了人们普遍担心的疾病、失业和社会孤立之外，看护者还负责监督孩子的教育和治疗计划，而他们往往缺乏急需的专业人士的支持。方法 本研究旨在探讨 COVID-19 对加利福尼亚州和俄勒冈州 77 个种族、语言和社会经济多元化且有智力和发育障碍 (IDD) 幼儿的家庭的影响，这些家庭正在参与更大规模的干预研究。家长回答了五个采访问题，涉及大流行的影响、为孩子提供的服务、一线希望或积极方面、应对措施以及他们对大流行长期影响的担忧。结果 家长们表示，他们面临的最大挑战是在家照顾孩子，因为失去了许多基本服务。家长们报告了这一流行病的一些积极方面，尤其是作为一个家庭在一起。尽管情况有积极的一面，但由于服务、教育和社会参与机会的丧失，许多家长对疫情对孩子发展的长期影响表示担忧。结论 结果表明，患有 IDD 的幼儿的父母在大流行期间报告了在家中面临的重大挑战。专业支持，特别是在重新开放阶段，对于支持家庭福祉和儿童发展成果至关重要。
Background The COVID-19 pandemic introduced challenges to families with young children with developmental delays. Beyond the widespread concerns surrounding illness, loss of employment and social isolation, caregivers are responsible for overseeing their children's educational and therapeutic programmes at home often without the much needed support of professionals. Method The present study sought to examine the impact of COVID-19 in 77 ethnically, linguistically and socioeconomically diverse families with young children with intellectual and developmental disabilities (IDDs) in California and Oregon, who were participating in larger intervention studies. Parents responded to five interview questions about the impact of the pandemic, services for their child, silver linings or positive aspects, coping and their concerns about the long-term impact of the pandemic. Results Parents reported that their biggest challenge was being at home caring for their children with the loss of many essential services. Parents reported some positive aspects of the pandemic, especially being together as a family. Although there were positive aspects of the situation, many parents expressed concern about long-term impacts of the pandemic on their children's development, given the loss of services, education and social engagement opportunities. Conclusion Results suggest that parents of young children with IDD report significant challenges at home during the pandemic. Professional support, especially during the reopening phases, will be critical to support family well-being and child developmental outcomes.