Caregiver well-being and child quality of life
Caregiver well-being and child quality of life
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DOI：
10.1016/j.otohns.2006.09.005
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发表时间：
2007-02-01
影响因子：
3.4
通讯作者：
Rosenfeld, Richard M.
中科院分区：
文献类型：
--
作者：
Boruk, Marina;Lee, Paul;Rosenfeld, Richard M.
目的：描述中耳炎对儿童家庭和照顾者的影响，以及这种影响如何影响照顾者对儿童生活质量（QOL）和功能健康状态（FHS）的看法。研究设计和设置：前瞻性研究，研究对象为6个月至12岁的复发性或慢性中耳炎患儿，从初级保健儿科诊所和转诊基础儿科耳鼻喉科诊所招募。对调查措施进行重测信度、内部一致性和效度评估。采用多元回归分析探讨关系。结果：我们纳入159个家庭，儿童的平均年龄为3.3岁，照顾者的平均年龄为34岁。大多数护理人员上过大学（80%），64%有工作。照顾者影响问卷（CIQ）具有良好的重测信度（r = 0.83）、内部一致性（alpha = 0.88）和结构效度（r = 0.37 ~ 0.62）。大多数看护者（52%）因为孩子的耳朵问题至少“有时”感到紧张或激动，29%的人“有一段时间”失眠，56%的人不得不改变日常活动。多变量分析显示，照顾者生活质量解释了儿童疾病特异性生活质量变异性的62%，照顾者家庭健康状况解释了儿童家庭健康状况变异性的45%。结论：6项CIQ调查可以有效可靠地评估中耳炎对照顾者和家庭功能的影响。照顾者对儿童生活质量和家庭安全的评分在很大程度上受照顾者对其个人情况的看法的影响。意义：在使用代理完成调查评估中耳炎对儿童的影响时，应考虑照顾者的生活质量和FHS。(C) 2007年美国耳鼻喉头颈外科学会基金会。版权所有。
OBJECTIVE: To describe the impact of otitis media on the child's family and caregiver, and how this impact influences the caregiver's perception of child's quality of life (QOL) and functional health status (FHS).STUDY DESIGN AND SETTING: Prospective study of children aged 6 months to 12 years with recurrent or chronic otitis media recruited from a primary care pediatrics practice and a referral-based pediatric otolaryngology practice. Survey measures were assessed for test-retest reliability, internal consistency, and validity. Multiple regression analysis was used to explore relationships.RESULTS: We enrolled 159 families, with mean age of 3.3 years for the child and 34 years for the caregiver. Most caregivers attended college (80%) and 64% were employed. The Caregiver Impact Questionnaire (CIQ) had good test-retest reliability (r = 0.83), internal consistency (alpha = 0.88), and construct validity (r = 0.37 to 0.62). Most caregivers (52%) were nervous or agitated at least "some of the time" because of their child's ear problems, 29% lost sleep "a good bit of time," and 56% had to change daily activities. Multivariate analysis showed that caregiver QOL explained 62% of variability in child disease-specific QOL, and that caregiver FHS explained up to 45% of the variability in child FHS.CONCLUSION: The 6-item CIQ survey permits a valid and reliable assessment of otitis media impact on caregivers and family functioning. Caregiver ratings of child QOL and FHS are largely influenced by caregiver perceptions of their own personal situation.SIGNIFICANCE: The caregiver QOL and FHS should be considered when using proxy-completed surveys to assess the impact of otitis media on children. (C) 2007 American Academy of Otolaryngology-Head and Neck Surgery Foundation. All rights reserved.