The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: development and descriptive data
The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: development and descriptive data
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DOI：
10.1186/1471-244x-9-51
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发表时间：
2009-08-12
期刊：
影响因子：
4.4
通讯作者：
Lovestone, Simon
中科院分区：
文献类型：
--
作者：
Stewart, Robert;Soremekun, Mishael;Lovestone, Simon
背景：案例注册已在心理健康研究中广泛使用。电子病历的最新发展以及计算机软件中以匿名格式搜索和分析它们的可能性，有可能彻底改变此研究工具。 （BRC）案例寄存器交互式搜索工具（CRIS），该工具允许可访问的数据集源自SLAM，SLAM是欧洲最大的二级心理保健提供者。所有临床数据（包括自由文本）均可以匿名数据集的形式进行分析。开发涉及系统的构建和设置必要的安全性（具有功能性和程序性元素）。注重：截至2008年10月，为寄存器数据库提供了描述性数据。当时的数据库包括122,440案例，35,396个案例，在护理计划方法下接受主动案例管理。就性别和种族而言，数据库是来源人群的合理代表。最常见的分配主要诊断是在ICD情绪障碍（n = 12,756）类别内，其次是精神分裂症和相关疾病（8158），药物滥用（7749）（7749），Neuroses（7105）（7105）和有机疾病（6414）。案例寄存器代表了该研究设计的“新一代”，建立在长期运行的完全电子临床记录的系统上，并允许对数值，字符串和自由文本数据进行深入的二次分析，同时通过技术和程序性保障来保存匿名。
Background: Case registers have been used extensively in mental health research. Recent developments in electronic medical records, and in computer software to search and analyse these in anonymised format, have the potential to revolutionise this research tool.Methods: We describe the development of the South London and Maudsley NHS Foundation Trust (SLAM) Biomedical Research Centre (BRC) Case Register Interactive Search tool (CRIS) which allows research-accessible datasets to be derived from SLAM, the largest provider of secondary mental healthcare in Europe. All clinical data, including free text, are available for analysis in the form of anonymised datasets. Development involved both the building of the system and setting in place the necessary security (with both functional and procedural elements).Results: Descriptive data are presented for the Register database as of October 2008. The database at that point included 122,440 cases, 35,396 of whom were receiving active case management under the Care Programme Approach. In terms of gender and ethnicity, the database was reasonably representative of the source population. The most common assigned primary diagnoses were within the ICD mood disorders (n = 12,756) category followed by schizophrenia and related disorders (8158), substance misuse (7749), neuroses (7105) and organic disorders (6414).Conclusion: The SLAM BRC Case Register represents a 'new generation' of this research design, built on a long-running system of fully electronic clinical records and allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.