The prevalence and nature of modified housing and assistive devices use among Americans with multiple sclerosis
The prevalence and nature of modified housing and assistive devices use among Americans with multiple sclerosis
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DOI：
10.3233/jvr-150732
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发表时间：
2015-01-01
影响因子：
0.9
通讯作者：
Frain, Michael
中科院分区：
文献类型：
--
作者：
Bishop, Malachy;Dennis, Katherine;Frain, Michael
背景技术背景：多发性硬化症（MS）通常与导致活动受限和功能限制的症状相关，并且对于许多人来说，这导致在其住所内安全和独立运作的能力改变。虽然辅助技术设备和住宅改造可以显着改善有限的流动性的影响，很少有人知道他们在美国的使用和流行。本文介绍了第一次国家评估的流行率住宅辅助设备和修改美国人与MS。目的：本研究的目的是评估的流行率，和水平的需要，住房改造和设备之间的美国人与MS，典型的支付手段，这些适应，以及人口和临床特征与他们的拥有。方法：为了实现一个具有代表性的全国性调查，从多发性硬化症患者登记处的北美研究委员会成员和NARCOMS登记处代表性较低的州的国家多发性硬化症协会的选定分会中随机选择了5082名MS成人样本。相对少量的变化构成了人们使用或报告需要的大多数修改和设备。六个最普遍的修改中有五个涉及浴室。改变，以促进无障碍主要支付的人与MS。一般情况下，谁报告更大程度的流动性限制或残疾的人有更大的可能性已作出住房modifies.CONCLUSION：继续关注无障碍住房的问题，为美国人与MS是必要的，仍然是一个显着的，经常未满足的需要，无障碍的修改和设备。
BACKGROUND: Multiple sclerosis (MS) is frequently associated with symptoms that lead to mobility restriction and functional limitations, and for many this results in an altered capacity to safely and independently function within their residence. Although assistive technology devices and residential modifications can significantly ameliorate the impact of limited mobility, little is known about their use and prevalence in the US. This article presents the first national assessment of the prevalence of residential assistive devices and modifications among Americans with MS.OBJECTIVE: The objectives of this study were to evaluate the prevalence of, and level of need for, housing modifications and devices among Americans with MS, the typical means of payment for these adaptations, and the demographic and clinical characteristics associated with their possession.METHODS: In order to achieve a representative national survey, a sample of 5082 adults with MS was randomly selected from the membership of the North American Research Committee on Multiple Sclerosis patient registry and selected chapters of the National Multiple Sclerosis Society in states in which the NARCOMS registry had lower representation.RESULTS: A relatively small number of changes made up the majority of the modifications and devices that people used or reported needing. Five of the six most prevalent modifications involved the bathroom. Changes to promote accessibility were primarily paid for the person with MS. Generally, people who reported greater degrees of mobility limitation or disability had an increased likelihood of having made housing modifications.CONCLUSION: Continued attention to the issue of accessible housing for Americans with MS is necessary, and there remains a significant and frequently unmet need for accessibility modifications and devices.