"I am not a statistic" ovarian cancer survivors' views of factors that influenced their long-term survival
"I am not a statistic" ovarian cancer survivors' views of factors that influenced their long-term survival
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DOI：
10.1016/j.ygyno.2019.10.007
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发表时间：
2019-12-01
影响因子：
4.7
通讯作者：
Pearce, Celeste Leigh
中科院分区：
文献类型：
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作者：
Alimujiang, Aliya;Khoja, Lilah;Pearce, Celeste Leigh
目的：虽然晚期卵巢癌的女性在五年内死亡的比例很高，但大约30%的人会存活更长时间。目前对导致异常生存的因素知之甚少。卵巢癌幸存者的观点进行了定性探讨，以确定他们认为影响他们的特殊卵巢癌survival.Methods的因素：四个焦点小组，分别在洛杉矶（加州），安阿伯（密歇根州），纽约（纽约）和埃德蒙顿（阿尔伯塔，加拿大），进行了与妇女谁生存了至少五年。在半结构化的讨论中探讨了身体活动，饮食，冥想，祈祷，治疗，补充药物和副作用。录音会话进行转录和编码，然后使用Dedoose版本8.0.35，定性分析software.Results：在26名妇女谁参加，23晚期疾病进行分析。出现了三个首要主题：（a）幸存者改善了他们的“生活方式”，包括但不限于健身和饮食;（B）幸存者能够获得强大的支持系统，包括家人、朋友、支持团体、宗教团体和医疗工作者;（c）幸存者有强烈的生活目标，表现为积极向上，对自己的生活负责，为自己辩护。长期幸存者对癌症有不同的经历，但他们认为生活方式的改变、动机和坚持、强烈的生活目标和强大的支持系统是改善生存的关键因素。这些初步研究结果表明，需要进一步的前瞻性研究，以确定是否存在有意义的差异，短期和长期生存者对这些特征。(C)2019由Elsevier Inc.出版
Objective: Although a high proportion of women with advanced stage ovarian cancer die within five years, approximately 30% will survive longer than this. The factors contributing to exceptional survival are currently poorly understood. The viewpoints of ovarian cancer survivors were qualitatively explored to determine the factors they felt have influenced their exceptional ovarian cancer survival.Methods: Four focus groups, one each in Los Angeles (California), Ann Arbor (Michigan), New York (New York) and Edmonton (Alberta, Canada), were conducted with women who had survived at least five years. Physical activity, diet, meditation, prayer, treatment, complementary medicine, and side effects were explored in semi-structured discussions. The audiotaped sessions were transcribed and coded and then analyzed using Dedoose Version 8.0.35, a qualitative analysis software.Results: Of the 26 women who participated, 23 had advanced stage disease. Three overarching themes emerged: (a) survivors had improved their 'lifestyles', including but not limited to fitness and diet; (b) survivors were able to draw on strong support systems, which included family, friends, support groups, faith communities, and healthcare workers; and (c) survivors had a strong life purpose, which manifested as positivity, taking charge of their lives, and advocating for themselves.Conclusions: Long-term survivors have varying experiences with their cancer, but identified lifestyle modification, motivation and persistence, strong life purpose, and strong support systems as key elements in their better survival. These preliminary findings indicate the need for further prospective studies to determine whether meaningful differences exist between short term and long term survivors on these characteristics. (C) 2019 Published by Elsevier Inc.