Decision-making and ante-natal screening for sickle cell and thalassaemia disorders - To what extent do faith and religious identity mediate choice?
Decision-making and ante-natal screening for sickle cell and thalassaemia disorders - To what extent do faith and religious identity mediate choice?
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DOI：
10.1177/0011392107084380
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发表时间：
2008-01-01
影响因子：
2
通讯作者：
Green, Josephine M.
中科院分区：
文献类型：
--
作者：
Atkin, Karl;Ahmed, Shenaz;Green, Josephine M.
在做出产前诊断的决定时，夫妇不仅利用他们对病情的理解，而且还利用他们文化认同的更广泛方面。本文着眼于如何信仰和宗教调解态度筛查，产前诊断和终止妊娠的镰状细胞和地中海贫血症。这篇文章特别报道了一项定性研究，该研究使用了来自各种信仰社区（穆斯林，锡克教徒，印度教和基督教）的焦点群体，这些群体有血红蛋白紊乱的风险，生活在英格兰。我们的研究结果表明，是否进行诊断检测的决定通常与对终止妊娠的态度有关。对大多数人来说，这种情况的后果和宗教信仰一样重要。更普遍地说，信仰是可以协商的和偶然的：在一个更广泛的道德框架内实现。人们认为宗教不是规定性的，生育决定被视为个人决定。在做决定时，人们在个人、家庭和社会关系的更广泛背景下利用信仰。
When making decisions about prenatal diagnosis, couples not only draw on their understanding of the condition but also broader aspects of their cultural identity. This article looks at how faith and religion mediate attitudes towards screening, prenatal diagnosis and termination of pregnancy for sickle cell and thalassaemia disorders. The article specifically reports on a qualitative study, which used focus groups from a variety of faith communities (Muslim, Sikh, Hindu and Christian), at risk of haemoglobin disorders, living in England. Our findings suggest that the decision about whether or not to have diagnostic testing generally related to attitudes towards the termination of pregnancy. The consequences of the condition were as important as religious beliefs to most people. More generally, faith beliefs emerged as negotiable and contingent: realized within a broader moral framework. Religion was felt not to be prescriptive and reproductive decisions were seen as personal. When making decisions, people utilize faith within a broader context of individual, family and social relationships.