The GMFM, PEDI, and CP-QOL and perspectives on functioning from children with CP, parents, and medical professionals.
The GMFM, PEDI, and CP-QOL and perspectives on functioning from children with CP, parents, and medical professionals.
复制标题
DOI：
10.3233/prm-2011-0148
复制
发表时间：
2011
影响因子：
1.9
通讯作者：
J. Vargus-Adams;Lauren K Martin;Stacey H Maignan;Amy C. Klein;S. Salisbury
中科院分区：
文献类型：
--
作者：
J. Vargus-Adams;Lauren K Martin;Stacey H Maignan;Amy C. Klein;S. Salisbury
目的：脑性瘫痪（CP）患儿的功能评价方法很多，但确定有意义的临床变化仍具有挑战性。本研究探讨了儿童、父母和医疗专业人员在几个功能领域的主观状态评分之间的相关性。将评分与三个结果指标进行比较，以建立最小的临床重要变化。方法采用粗大运动功能量表（GMFM）、儿童残疾评定量表（PEDI）和脑瘫儿童生活质量问卷（CP-QOL）进行评定。受访者提供了Likert量表和线性Anastomy量表的粗大运动功能，自我照顾，社会功能，生活质量和整体功能评分。计算结果测量分数和评级的相关性。结果122名CP儿童在所有GMFCS和MACS水平中，79名男性，年龄8.1 ± 2.9岁，通过27份儿童报告，122份父母报告和110份医学专业报告产生了状态评级。大多数评分是中度到高度相关的父母和医疗专业人员。结果测量分数往往显着相关的评级从医疗专业人员和父母，但通常不与儿童评级。结论：家长和医疗专业人员对CP儿童的粗大运动、自我护理、生活质量和总体状况有相似的看法，这些看法与标准结局指标相关，但往往与儿童的评分不一致。纵向使用的主观状态评级从父母和专业人士应有助于建立最小的临床重要差异CP的结果措施。
OBJECTIVE Many outcome measures assess function of children with cerebral palsy (CP), but establishing meaningful clinical change remains challenging. This study explored correlations between subjective status ratings in several functional domains, made by children, parents, and medical professionals. The ratings were compared with three outcome measures in preparation for longitudinal work to establish minimal clinically important change. METHOD Children were assessed with the Gross Motor Function Measure (GMFM), Pediatric Evaluation of Disability Inventory (PEDI), and Cerebral Palsy Quality of Life Questionnaire for Children (CP-QOL). Respondents provided Likert scale and Linear Analogue Scale ratings of gross motor function, self care, social function, quality of life, and overall function. Correlations were calculated for outcome measure scores and ratings. RESULTS 122 children with CP across all GMFCS and MACS levels, 79 male, aged 8.1 ± 2.9 years generated status ratings by 27 child reports, 122 parent reports, and 110 medical professional reports. Most ratings were moderately to highly correlated between parents and medical professionals. Outcome measure scores were frequently significantly correlated with pertinent ratings from medical professionals and parents but usually not with child ratings. CONCLUSIONS Parents and medical professionals have similar perceptions of gross motor, self-care, quality of life, and overall status for children with CP and these perceptions correlate with standard outcome measures, but often do not agree with children's ratings. Longitudinal use of subjective status ratings from parents and professionals should contribute to establishing minimal clinically important differences for CP outcome measures.