Initial experience with a group presentation of study results to research participants.

Initial experience with a group presentation of study results to research participants.
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DOI:
10.1186/1745-6215-9-16
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发表时间:
2008-03-21
期刊:
影响因子:
2.5
通讯作者:
Goldberg H
Goldberg H
中科院分区:
医学4区
文献类型:
--
作者:
Avins AL;Bent S;Padula A;Staccone S;Badua E;Goldberg H

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尽管有道德上的必要性,但并不经常向研究参与者通报他们所参与的研究的结果。这部分是由于结果公布后与每个参与者沟通的成本和负担。在一项关于锯棕榈治疗良性前列腺增生症状的随机临床试验结束和发表后,患者被邀请回到研究中心参加研究结果的小组报告。大约10%的与会者参加了两个介绍会之一。与会者对小组介绍的经验反应非常积极。向研究参与者进行小组报告是向那些希望获得信息的人传达研究结果的有效方法,并受到与会者的高度重视。如果能为这类演讲做好周密的计划,并在时间安排上有更大的灵活性,出席率可能会更高。Clinicaltrials.gov #NCT00037154
Despite ethical imperatives, informing research participants about the results of the studies in which they take part is not often performed. This is due, in part, to the costs and burdens of communicating with each participant after publication of the results. Following the closeout and publication of a randomized clinical trial of saw palmetto for treatment of symptoms of benign prostatic hyperplasia, patients were invited back to the research center to participate in a group presentation of the study results. Approximately 10% of participants attended one of two presentation sessions. Reaction to the experience of the group presentation was very positive among the attendees. A group presentation to research participants is an efficient method of communicating study results to those who desire to be informed and was highly valued by those who attended. Prospectively planning for such presentations and greater scheduling flexibility may result in higher attendance rates. Clinicaltrials.gov #NCT00037154
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