Dementia care in European countries, from the perspective of people with dementia and their caregivers
Dementia care in European countries, from the perspective of people with dementia and their caregivers
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DOI：
10.1111/jan.12581
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发表时间：
2015-06-01
影响因子：
3.8
通讯作者：
Hallberg, Ingalill R.
中科院分区：
文献类型：
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作者：
Karlsson, Staffan;Bleijlevens, Michel;Hallberg, Ingalill R.
目的调查八个欧洲国家的痴呆症患者及其非正式护理人员对整个痴呆症护理轨迹中的跨部门信息、沟通和协作的看法。背景与痴呆症患者一起生活以及与痴呆症患者的近亲意味着必须经历具有不同特征、需求、挑战和要求的阶段。设计定性研究。焦点小组在英国、爱沙尼亚、芬兰、法国、德国、荷兰、西班牙和瑞典进行。方法2011 年，痴呆症患者及其非正式照顾者 (N=137) 参加了焦点小组访谈。内容分析生成了痴呆症患者及其照顾者的信息、沟通和协作的暂定模型，然后进行了测试。结果核心发现是，信息、沟通和协作应重点关注痴呆症患者和非正式照顾者。照顾者。进入该疾病的发展轨迹及其后果被认为是一个重要的出发点。与专业护理的关系需要建立信任关系、量身定制的干预以及可以联系的个人或组织。专业知识和承诺、适应需求的服务和护理的变化很重要。结论由于护理的重点是痴呆症患者及其非正式护理人员，二元方法似乎最适合痴呆症护理。信任关系和特定的个人或组织的联系似乎是最佳实践的指标，适应痴呆症患者及其非正式护理人员的需求也是如此。
AimTo investigate persons with dementia and their informal caregivers' views of inter-sectoral information, communication and collaboration throughout the trajectory of dementia care, in eight European countries.BackgroundLiving with dementia and being next of kin to a person with dementia means having to live through stages that have different characteristics, needs, challenges and requirements.DesignQualitative research. Focus groups were conducted in England, Estonia, Finland, France, Germany, The Netherlands, Spain and Sweden.MethodsPersons with dementia and their informal caregivers (N=137) participated in focus group interviews during 2011. Content analysis generated a tentative model of information, communication and collaboration for people with dementia and their caregivers, which was then tested.ResultsThe core finding was that information, communication and collaboration were to be focused on the persons with dementia and the informal caregivers. Entering into the trajectory of the disease and its consequences was addressed as an important point of departure. The relation to professional care required establishing a trusting relationship, tailor-made intervention and a single person or organization to contact. Professional knowledge and commitment, variation in service and care adapted to needs were important.ConclusionAs focus of care is on the person with dementia and their informal caregivers, a dyadic approach seems most suitable for dementia care. A trusting relationship and a specific person or organization to contact seem to be indicators of best practice, as does adaptation to the needs of the person with dementia and their informal caregiver.