The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana.
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana.
复制标题
DOI：
10.1371/journal.pone.0258650
复制
发表时间：
2021
期刊：
影响因子：
3.7
通讯作者：
Sakyi KS
中科院分区：
文献类型：
--
作者：
Fonzi V;Sheriff B;Dalglish S;Anum A;Dwomo Agyei E;Diggs D;Eboigbe L;Owusu PG;Sakyi KS
对脑性瘫痪(CP)的研究缺乏对照顾者的知识和治疗实践的重视，特别是在低收入和中等收入国家，那里的社会文化背景鼓励各种治疗替代方案。在这项研究中，我们探索了激励加纳CP儿童照顾者寻求护理实践的信念和经验。对大阿克拉地区的25名照顾者、10名医疗提供者和5名替代提供者进行了半结构化访谈。参与者访谈采用扎根理论中的原则进行分析。构建了一个概念模型来说明影响就医行为的显著模式和动机因素。参与者的经验表明，照顾者最初向医疗提供者寻求物理治疗和处方药。然后，他们中的许多人转向替代方法来寻找治愈方法或解决特定的CP症状。随着时间的推移，大多数照顾者停止了医疗和替代治疗，转而接受家庭治疗。一些人完全退出了所有形式的护理。治疗费用、照顾者负担和耻辱强烈抑制了他们走出家门寻求护理。尽管照顾者愿意探索各种治疗方案，但居家治疗因其方便、低成本和适应患者和照顾者的需求而受到长期照顾者的青睐。
Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana. Semi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices. Participants’ experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home. Although caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs.
登录
查看更多内容
影响因子：
1.9
作者：
Nyante, Gifty Gyamah;Carpenter, Christine
通讯作者：
Carpenter, Christine
影响因子：
3.8
作者：
Polack, Sarah;Adams, Mel;Zuurmond, Maria
通讯作者：
Zuurmond, Maria
影响因子：
4.9
作者：
Bradford, Judith B.;Coleman, Sharon;Cunningham, William
通讯作者：
Cunningham, William
影响因子：
2.4
作者：
Grant, Monica J.;Pike, Isabel
通讯作者：
Pike, Isabel
DOI：
10.4102/ajod.v8i0.577
发表时间：
2019-01-01
期刊：
African Journal of Disability (Online)
影响因子：
--
作者：
Kyeremateng, Joana D.A.;Edusei, Anthony;Afriyie, Sally A.
通讯作者：
Afriyie, Sally A.