Facilitators and barriers of participation in a longitudinal research on migrant families in Badalona (Spain): A qualitative approach

Facilitators and barriers of participation in a longitudinal research on migrant families in Badalona (Spain): A qualitative approach
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DOI:
10.1111/hsc.12478
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发表时间:
2018-01-01
影响因子:
2.4
通讯作者:
Casabona, Jordi
Casabona, Jordi
中科院分区:
医学4区
文献类型:
--
作者:
Hernando, Cristina;Sabido, Meritxell;Casabona, Jordi

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流动人口在卫生研究中的代表性不足。我们进行了一项以社区为基础的定性研究,目的是考察流动人口参与纵向健康研究的意愿、障碍、促进者和原因。2014年5月至11月,在巴达罗纳和圣科洛马德格拉马内特(巴塞罗那),对出生在哥伦比亚、秘鲁、厄瓜多尔、玻利维亚、摩洛哥、巴基斯坦和中国的76名移徙者和9名关键线人进行了26次个别访谈和8个讨论小组。运用扎根理论和主题分析的方法对数据进行分析。使用Atlas-ti(R)软件。参与者愿意参加健康调查和生物样本测试,并同意在12个月后再次联系。参与者同意让他们的孩子参加同样的活动。与会者报告说,进行生物样本和了解其子女的健康状况是参与健康研究的最大好处。与会者报告说,参与的障碍是语言困难、时间限制和行动不便。参与的促进者包括提供关于研究目标和程序的完整和可理解的信息;向与参与者具有相同移民背景、性别、原籍国和社会经济地位的采访者提供信息;通过确保就近、隐私和保密来建立信任;尊重文化关系;以及获得金钱补偿和测试结果。把重点放在移民家庭而不是个人上,可能有助于参与这项研究。尽管总体上是有益的,但接受金钱补偿、列入关于性健康和生殖健康的问题以及血液样本检测导致对少数参与者的不信任。同时使用几种互联网工具是重新联系最推荐的工具。那些流动性风险更高、语言障碍更大、互联网使用更少的人更难重新联系。研究结果将有助于提高移民在纵向研究中的参与度和留存率。
Migrant populations are under-represented in health research. We conducted a community-based qualitative study with the aim to examine the willingness, barriers, facilitators and reasons for participating in longitudinal health research among migrants. In Badalona and Santa Coloma de Gramanet (Barcelona) from May to November 2014, 26 individual interviews and 8 discussion groups were conducted with a convenience sample of 76 migrants born in Colombia, Peru, Ecuador, Bolivia, Morocco, Pakistan and China; and 9 key informants. Grounded Theory methods and thematic analysis was used to analyse the data. Atlas-ti(R) software was used. Participants were willing to participate in health surveys and biological samples testing, and agreed to be re-contacted after 12months. Participants agreed to the same participation for their children. Participants reported that undertaking biological samples and knowledge of the health status of their children were the greatest benefits of participation in health research. Barriers to participation reported by participants were language difficulties, time constraints and mobility issues. Facilitators of participation included offering complete and understandable information about the study objectives and procedures; offering interviewers with the same migrant background, gender, country of origin and socioeconomic status as participants; building trust through ensuring proximity, privacy and confidentiality; respecting cultural relationships; and receiving monetary compensation and test results. Focusing on migrant families instead of individuals may facilitate participation in the study. Despite being beneficial in general, receipt of monetary compensation, inclusion of questions related to sexual and reproductive health, and blood sample testing resulted in distrust for a small number of participants. The simultaneous use of several Internet tools was the most recommended tool for re-contact. Those with higher risk of mobility, greater language barriers and less Internet use were more difficult to re-contact. Study findings will help to improve participation and retention of migrants in longitudinal research.