Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer
Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer
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DOI：
10.1111/jgs.13888
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发表时间：
2016-01-01
影响因子：
6.3
通讯作者：
DeMichele, Kimberly
中科院分区：
文献类型：
--
作者：
Kent, Erin E.;Malinoff, Rochelle;DeMichele, Kimberly
研究人员和临床医生越来越认识到患者报告结果（PRO）数据的价值，以更好地描述人们的健康和疾病和护理经验。考虑到65岁及以上成年人的癌症患病率不断上升，PRO数据与老年癌症患者特别相关，他们通常需要复杂的癌症护理并患有其他合并症。监测流行病学和最终结果（SEER）癌症登记处和医疗保险健康结果调查（MHOS）之间的数据链接是通过国家癌症研究所与医疗保险和医疗补助服务中心之间的合作伙伴关系创建的，该合作伙伴关系创造了检查有癌症和无癌症的医疗保险优势登记者中PRO的机会。2013年12月SEER-MHOS数据的关联包括12个队列的关联数据，使关联数据集中的癌症患者人数达到95，723人，非癌症患者人数为1，510，127人。本文回顾了资源的特征，并提供了数据集中个人的一些描述性特征（与健康相关的生活质量，体重指数，跌倒风险管理，过去一个月不健康天数）的信息。在当前的描述性分析中纳入了未患（n = 258，108）和患（n = 3，440）癌症的个体（1，311例男性前列腺癌，982例女性乳腺癌，689例结直肠癌，458例肺癌）。随着寿命的延长、有效疗法和早期检测的进步以及人口的增长，预计到2020年，65岁及以上的癌症患者人数将超过1200万。SEER-MHOS提供人口水平的、自我报告的、与癌症登记相关的数据，用于对这一不断增长的人口进行以人为中心的监测研究。
Researchers and clinicians are increasingly recognizing the value of patient-reported outcome (PRO) data to better characterize people's health and experiences with illness and care. Considering the rising prevalence of cancer in adults aged 65 and older, PRO data are particularly relevant for older adults with cancer, who often require complex cancer care and have additional comorbid conditions. A data linkage between the Surveillance Epidemiology and End Results (SEER) cancer registry and the Medicare Health Outcomes Survey (MHOS) was created through a partnership between the National Cancer Institute and the Centers for Medicare and Medicaid Services that created the opportunity to examine PROs in Medicare Advantage enrollees with and without cancer. The December 2013 linkage of SEER-MHOS data included the linked data for 12 cohorts, bringing the number of individuals in the linked data set to 95,723 with cancer and 1,510,127 without. This article reviews the features of the resource and provides information on some descriptive characteristics of the individuals in the data set (health-related quality of life, body mass index, fall risk management, number of unhealthy days in the past month). Individuals without (n = 258,108) and with (n = 3,440) cancer (1,311 men with prostate cancer, 982 women with breast cancer, 689 with colorectal cancer, 458 with lung cancer) were included in the current descriptive analysis. Given increasing longevity, advances in effective therapies and earlier detection, and population growth, the number of individuals aged 65 and older with cancer is expected to reach more than 12 million by 2020. SEER-MHOS provides population-level, self-reported, cancer registry-linked data for person-centered surveillance research on this growing population.