Parent perspectives on family-based psychosocial interventions in pediatric cancer: a mixed-methods approach
Parent perspectives on family-based psychosocial interventions in pediatric cancer: a mixed-methods approach
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DOI：
10.1007/s00520-013-2083-1
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发表时间：
2014-05-01
影响因子：
3.1
通讯作者：
Deatrick, Janet A.
中科院分区：
文献类型：
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作者：
Hocking, Matthew C.;Kazak, Anne E.;Deatrick, Janet A.
儿童癌症的家庭干预面临着将心理社会护理纳入强化治疗和不断升级的压力时期的挑战。很少有研究寻求家长对诊断后不久提供的干预措施的作用的投入。这项混合方法的研究获得了家长对以家庭为基础的干预措施的潜在作用的看法。25名家长通过焦点小组和问卷调查提供了关于心理社会干预的结构和时间的反馈。定性分析产生了三个主题，说明了创伤压力框架：（1）关注癌症儿童和解决其他家庭需求之间的紧张关系，（2）影响父母与其他父母分享经验的因素，以及（3）将干预措施与父母调整轨迹相匹配的重要性。定量数据表明，父母倾向于在诊断后6个月内进行干预，近一半的人倾向于在诊断后2个月内进行干预，大多数人希望干预措施只针对父母。定性主题强调了使用创伤应激框架为儿童癌症患者制定以家庭为基础的干预措施的重要性。
Family-based interventions in pediatric cancer face challenges associated with integrating psychosocial care into a period of intensive treatment and escalating stress. Little research has sought input from parents on the role of interventions delivered shortly after diagnosis. This mixed-methods study obtained parents' perspectives on the potential role of family-based interventions. Twenty-five parents provided feedback on the structure and timing of psychosocial interventions via focus groups and a questionnaire. Qualitative analyses resulted in three themes that were illustrative of a traumatic stress framework: (1) tension between focusing on child with cancer and addressing other family needs, (2) factors influencing parents' perception of a shared experience with other parents, and (3) the importance of matching interventions to the trajectory of parent adjustment. Quantitative data indicated that parents preferred intervention within 6 months of diagnosis, with almost half favoring within 2 months of diagnosis, and the majority wanted interventions targeted to parents only. Qualitative themes highlight the importance of using a traumatic stress framework to inform the development of family-based interventions for those affected by pediatric cancer.