"It's extremely hard but it's not a burden": A qualitative study of family caregiving for people living with dementia in Vietnam.
"It's extremely hard but it's not a burden": A qualitative study of family caregiving for people living with dementia in Vietnam.
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DOI：
10.1371/journal.pone.0259788
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发表时间：
2021
期刊：
影响因子：
3.7
通讯作者：
Hinton L
中科院分区：
文献类型：
--
作者：
Nguyen H;Nguyen T;Tran D;Hinton L
越南是世界上老龄化速度最快的国家之一，患有阿尔茨海默病和相关痴呆症（ADRD）的人数不断增加。越南的家庭为痴呆症患者提供大部分护理，但我们对他们的经历和需求的了解有限。这项研究从家庭照顾者和其他关键知情人的角度考察了河内市中心以外的半农村地区的家庭照顾经历。对 21 名主要利益相关者（12 名家庭护理人员和 9 名医疗保健提供者和社区领袖）进行了半结构化访谈。进行了描述性主题分析。定性数据分析揭示了与家庭看护体验相关的四个主题：1）将痴呆症状视为衰老的正常部分而不是一种疾病；2）将看护视为一种道德和预期的家庭义务；3）受性别和兄弟姐妹顺序严重影响的看护模式；4）多重挑战或困难，包括时间限制、收入损失、社会孤立加剧、对他们感知的身体健康的损害以及情绪困扰。护理人员拒绝接受护理是一种“负担”的观念，并通过沮丧、悲伤和疲惫等词语来表达他们的痛苦。在这种资源匮乏的环境中，家庭护理的压力可能会因缺乏社区资源、阻碍外部寻求帮助的文化耻辱以及护理提供的经济影响而放大。该研究强调了越南妇女的脆弱性和困境，她们在护理角色中经常面临多重挑战，并且迫切需要制定基于社区的计划和支持。
Vietnam is one of the fastest-aging countries in the world with a rising number of people with Alzheimer’s disease and related dementias (ADRD). Families in Vietnam provide most of the care for persons living with dementia, yet our understanding of their experiences and needs is limited. This study examined the family caregiving experience in a semi-rural region outside of central Hanoi from the perspectives of family caregivers and other key informants. Semi-structured interviews were conducted with 21 key stakeholders (12 family caregivers and 9 healthcare providers and community leaders). A descriptive, thematic analysis was conducted. Qualitative data analysis revealed four themes related to the family caregiving experience: 1) perceptions of dementia symptoms as a normal part of aging rather than a disease, 2) caregiving as a moral and expected familial obligation, 3) patterns of caregiving that are heavily influenced by both gender and sibling order, and 4) multiple challenges or hardships, including time constraints, loss of income, increased social isolation, a toll on their perceived physical health, and emotional distress. Caregivers rejected the notion that caregiving was a “burden” and expressed their distress through terms such as frustration, sadness, and exhaustion. In this low-resource setting, the stress of family caregiving may be amplified by lack of community resources, cultural stigma discouraging outside help-seeking, and economic impact of care provision. The study highlights the vulnerability and predicament of Vietnamese women who often face multiple challenges in their caregiving role as well as the urgent need for the development of community-based programs and supports.
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