LGBT people's knowledge of and preparedness to discuss end-of-life care planning options
LGBT people's knowledge of and preparedness to discuss end-of-life care planning options
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DOI：
10.1111/hsc.12113
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发表时间：
2014-09-01
影响因子：
2.4
通讯作者：
Cartwright, Colleen
中科院分区：
文献类型：
--
作者：
Hughes, Mark;Cartwright, Colleen
尽管艾滋病毒/艾滋病造成了毁灭性的影响，但对男女同性恋、双性恋和变性者群体的临终关怀规划研究相对不足，特别是在澳大利亚。本文报告了一项对305名生活在新南威尔士州的LGBT人群的调查结果，该调查研究了他们对临终关怀的知识和态度。本文的重点是他们准备与医疗保健提供者讨论任何临终护理计划。结果强调，虽然大多数受访者都知道新南威尔士州四个关键的临终护理计划选项中的三个-持久的授权书，持久的监护人和负责人（只有少数人听说过提前医疗保健指令）-实际上很少有人采取这些选项。只有少数受访者能够正确识别谁有法律的权利为车祸后失去知觉的人做出治疗决定。一小部分人曾与全科医生或其他主要医疗保健提供者讨论过临终关怀方案，只有在极少数情况下，这些问题是由医生自己提出的。那些最有可能不舒服与从业者讨论这些问题的人包括年轻人，那些不完全向家庭成员开放他们的性取向的人，变性人和其他不将自己的性别定义为男性或女性的人。该文件强调了教育战略的重要性，以提高对LGBT人群的临终关怀规划选择的认识，以及提高医疗服务提供者准备与LGBT患者讨论这些问题的战略。
Despite the devastating impact of HIV/AIDS, end-of-life care planning among lesbian, gay, bisexual and transgender (LGBT) communities is relatively under-researched, especially in Australia. This paper reports findings of a survey of 305 LGBT people living in New South Wales, which examined their knowledge of and attitudes towards end-of-life care. The focus of this paper is their preparedness to discuss with healthcare providers any end-of-life care plans. The results highlight that while the majority of respondents were aware of three of the four key end-of-life care planning options available in New South Wales - enduring powers of attorney, enduring guardians and person responsible (only a minority had heard of advance healthcare directives) - a much smaller number of people had actually taken up these options. Only a minority of respondents were able to identify correctly who had the legal right to make treatment decisions for a person who is unconscious following a car accident. A small proportion of people had discussed end-of-life care options with general practitioners or another main healthcare provider, and only in very few cases were these issues raised by the practitioners themselves. Those most likely to not feel comfortable discussing these issues with practitioners included younger people, those not fully open about their sexuality to family members, and transgender people and others who do not define their gender as male or female. The paper highlights the importance of education strategies to raise awareness of the end-of-life care planning options among LGBT people, as well as strategies for increasing health providers' preparedness to discuss these issues with LGBT patients.