African American Families on Autism Diagnosis and Treatment: The Influence of Culture

African American Families on Autism Diagnosis and Treatment: The Influence of Culture
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DOI:
10.1007/s10803-015-2482-x
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发表时间:
2015-10-01
影响因子:
3.9
通讯作者:
Shambley-Ebron, Donna
Shambley-Ebron, Donna
中科院分区:
心理学3区
文献类型:
--
作者:
Burkett, Karen;Morris, Edith;Shambley-Ebron, Donna

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文化因素,如医疗保健的可及性和自闭症谱系障碍(ASD)的症状解释,被认为是影响非裔美国儿童ASD延迟诊断和治疗的因素。对24名家庭成员和28名自闭症专家进行了一项关于照顾自闭症儿童的非裔美国城市家庭的定性研究。文化关怀意味着家庭保护他们的孩子免受伤害,包括潜在的或实际的不信任遭遇,并为他们的孩子和社区采取行动,以优化他们的孩子的健康,并解决社区内ASD的知识缺陷。家庭和专业人士认为,文化影响延迟了家庭接受和寻求适当的医疗保健,影响了自闭症的及时诊断和治疗。
Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child's health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families' receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment.