Exploring spirituality in family caregivers of patients with primary malignant brain tumors across the disease trajectory.

Exploring spirituality in family caregivers of patients with primary malignant brain tumors across the disease trajectory.
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DOI:
10.1188/13.onf.e119-e125
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发表时间:
2013-05-01
影响因子:
1.9
通讯作者:
Sherwood, Paula
Sherwood, Paula
中科院分区:
医学4区
文献类型:
--
作者:
Newberry, Alyssa G;Choi, Chien-Wen Jean;Sherwood, Paula

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目的/目的:为了确定是否感知水平的灵性在原发性恶性脑肿瘤(PMBTs)患者的家庭照顾者的变化在整个疾病的trajectory.Design:正在进行的描述性,纵向研究。设置:宾夕法尼亚州西南部。样本:50名PMBTs患者的家庭照顾者。方法:照顾者和照顾者在诊断时招募。参与者在随后的两个时间点进行了采访,四个月和八个月后diagnosed.Main研究变量:照顾受助人的症状,神经心理状态,和身体功能,以及照顾者的社会支持。结果显示,在基线和八个月报告的灵性分数没有显着差异(p = 0.8),表明灵性可能是一个稳定的性状在整个疾病trajectory.CONCLUSIONS:灵性保持相对稳定的沿着疾病轨迹的过程。报告的照顾者抑郁症状和焦虑是较低的配对时,较高的报告的灵性。启示:临床医生可以更好地确定照顾者的风险,为负面结果,确定那些谁报告的灵性水平较低。未来的干预措施应侧重于制定和实施干预措施,提供保护性缓冲,如增加社会支持。知识翻译:灵性是一个相对稳定的特质。高水平的灵性可以作为负面心理健康结果的保护缓冲。灵性水平低的照顾者可能面临更大程度的负担,焦虑和压力的风险。
PURPOSE/OBJECTIVES: To determine whether the perceived level of spirituality in family caregivers of patients with primary malignant brain tumors (PMBTs) changes across the disease trajectory.DESIGN: Ongoing descriptive, longitudinal study.SETTING: Southwestern Pennsylvania.SAMPLE: 50 family caregivers of patients with PMBT.METHODS: Caregivers and care recipients were recruited at time of diagnosis. Participants were interviewed at two subsequent time points, four and eight months following diagnosis.MAIN RESEARCH VARIABLES: Care recipients' symptoms, neuropsychologic status, and physical function, as well as caregiver social support.FINDINGS: Results showed no significant difference in spirituality scores reported at baseline and eight months (p = 0.8), suggesting that spirituality may be a stable trait across the disease trajectory.CONCLUSIONS: Spirituality remains relatively stable along the course of the disease trajectory. Reports of caregiver depressive symptoms and anxiety were lower when paired with higher reports of spirituality.IMPLICATIONS FOR NURSING: Clinicians can better identify caregivers at risk for negative outcomes by identifying those who report lower levels of spirituality. Future interventions should focus on the development and implementation of interventions that provide protective buffers such as increased social support.KNOWLEDGE TRANSLATION: Spirituality is a relatively stable trait. High levels of spirituality can serve as a protective buffer from negative mental health outcomes. Caregivers with low levels of spirituality may be at risk for greater levels of burden, anxiety, and stress.