Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate
Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate
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DOI：
10.1177/1055665619862457
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发表时间：
2020-01-01
期刊：
影响因子：
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通讯作者：
Rumsey, Nichola
中科院分区：
文献类型：
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作者：
Stock, Nicola Marie;Costa, Bruna;Rumsey, Nichola
目的：尽管唇裂和/或腭裂（CL/P）的诊断对父母有潜在的心理影响，但目前很少有大规模的研究。利用从唇腭裂集体出生队列研究中提取的数据，当前的研究旨在检查诊断对父母和家庭功能的心理影响，并确定有助于父母适应的风险和/或保护因素，以便为未来的心理干预提供信息。方法：提取 1163 名家长（644 名母亲和 519 名父亲）的家长报告问卷数据。结果测量包括 PedsQL-家庭影响模块、感知压力量表、医院焦虑和抑郁量表以及由心理学临床卓越网络设计的针对具体情况的工具。结果：总体而言，研究结果表明父母能够很好地适应诊断。研究发现，可以保护母亲和父亲免受心理困扰的因素包括积极的生活取向、对医疗保健的满意度和人际关系满意度。亲密的友谊也能防止母亲患上抑郁症。母亲的危险因素包括先前存在心理健康状况以及怀孕期间的压力生活事件。父亲的危险因素包括受孕时年龄较大以及最近缺勤。结论：研究结果表明，诊断 CL/P 后需要对父母双方进行适当的心理筛查，并强调协调多学科护理对心理健康的重要性。加强家庭关系和增强复原力的预防性干预模式需要进一步研究。
Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cleft Collective Birth Cohort Study, the current study aimed to examine the psychological impact of the diagnosis on parent and family functioning and to identify risk and/or protective factors contributing to parental adjustment in order to inform future psychological intervention. Methods: Parent-reported questionnaire data were extracted for 1163 parents (644 mothers and 519 fathers). Outcome measures included the PedsQL-Family Impact Module, the Perceived Stress Scale, the Hospital Anxiety and Depression Scale, and a condition-specific tool designed by the Psychology Clinical Excellence Network. Results: Overall, findings suggest that parents adjust well to the diagnosis. Factors found to be protective against psychological distress for both mothers and fathers included a positive life orientation, satisfaction with health care, and relationship satisfaction. Close friendships were also protective against depression in mothers. Risk factors for mothers included the presence of a prior mental health condition, and stressful life events during pregnancy. Risk factors for fathers included being older at the time of conception, and recently being absent from work. Conclusions: Findings suggest a need for appropriate psychological screening of both parents following a diagnosis of CL/P and emphasize the importance of coordinated multidisciplinary care for psychological health. Preventative models of intervention to strengthen familial relationships and build resilience require further investigation.