An evaluation of two decision-making scales for children with life-limiting illnesses
An evaluation of two decision-making scales for children with life-limiting illnesses
复制标题
DOI：
10.1177/0269216309104892
复制
发表时间：
2009-09-01
影响因子：
4.4
通讯作者：
Shenkman, E.
中科院分区：
文献类型：
--
作者：
Knapp, C.;Huang, I. C.;Shenkman, E.
目的：每年约有500 000名儿童患有限制生命的疾病。这些儿童中的许多人可以从提供支持性服务的儿科姑息治疗中受益。这些服务还可以帮助父母做出决定。为了衡量儿科姑息治疗计划对决策的影响，必须确定一个有效和可靠的工具。本研究旨在验证决策冲突量表（DCS）和COMRADE工具的心理测量学特性与生命限制性疾病的儿童。方法：使用调查数据进行分析，收集了266名父母的医疗补助登记的儿童有生命限制的疾病。结果如下：分析的结果表明，DCS有更好的心理测量特性，测量决策的人口中的儿童与生命限制性疾病比COMRADE。结论：儿科姑息治疗计划应使用DCS来衡量旨在支持决策冲突程度高的家庭的服务的有效性。姑息医学（2009）; 23：518-525
Purpose: Annually, about 500,000 children are coping with life-limiting illnesses. Many of these children could benefit from pediatric palliative care which provides supportive services. These services can also aid parents in decision making. In order to measure the effect of pediatric palliative care programs on decision making, a valid and reliable tool must be identified. This study aims to validate the psychometric properties of the Decisional Conflict Scale (DCS) and the COMRADE instruments for children with life-limiting illnesses. Methods: Analyses were conducted using survey data collected from 266 parents whose Medicaid enrolled children have life-limiting illnesses. Results: Results of the analyses suggest that the DCS has better psychometric properties for measuring decision making within the population of children with life-limiting illnesses than the COMRADE. Conclusion: Pediatric palliative care programs should use the DCS to measure the effectiveness of services aimed at supporting families with high levels of decisional conflict. Palliative Medicine (2009); 23: 518-525