Exploring websites on cancer clinical trials: An empirical review

Exploring websites on cancer clinical trials: An empirical review
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DOI:
10.1016/j.cct.2005.07.004
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发表时间:
2005-10-01
影响因子:
2.2
通讯作者:
Hegedus, S
Hegedus, S
中科院分区:
医学4区
文献类型:
--
作者:
Simon, C;Hegedus, S

文献摘要

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互联网上有数以万计的癌症相关网站,其中越来越多的网站以某种方式致力于癌症临床研究。到目前为止,人们对这些网站的范围、内容和一般质量知之甚少。本研究选取了在互联网上搜索“癌症临床试验”(CCT)后返回的前100个网站。在这些网站中,66个网站被逐页审查,以确定其范围、内容和一般质量。这项研究发现,与CCT相关的网站之间存在相当大的多样性。其中许多可能对临床研究人员或对参与CCT感兴趣的患者有用。然而,有一部分很难导航和理解,缺乏保密性和其他保证,并提出了关于成本、获取机会和可能对研究样本产生偏见的问题。需要进一步的研究来确定在线努力带来的机会和缺点,以加强对癌症临床试验的了解和获取。(C)2005 Elsevier Inc.保留所有权利。
The Internet houses tens of thousands of cancer-related websites, a growing number of which are devoted in some way to cancer clinical research. To date, little is known about the range, content, and general quality of these websites. This study selected the first 100 websites returned after searching the Internet for "cancer clinical trial" (CCT). Of these, 66 websites were examined page by page to characterize their range, content, and general quality. The study found evidence of considerable diversity among CCT-related websites. Many may be useful to clinical investigators or patients interested in participating in CCTs. However, a proportion were difficult to navigate and understand, lacked confidentiality and other assurances, and raised questions about cost, access, and the potential for biasing study samples. Further research is needed to determine the opportunities and drawbacks presented by online efforts to enhance knowledge of and access to cancer clinical trials. (c) 2005 Elsevier Inc. All rights reserved.