The Impact of Chronic Skin Disease on Daily Life (ISDL): a generic and dermatology-specific health instrument
The Impact of Chronic Skin Disease on Daily Life (ISDL): a generic and dermatology-specific health instrument
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DOI：
10.1111/j.1365-2133.2007.08296.x
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发表时间：
2008-01-01
影响因子：
10.3
通讯作者：
Kraaimaat, F. W.
中科院分区：
文献类型：
--
作者：
Evers, A. W. M.;Duller, P.;Kraaimaat, F. W.
背景在皮肤病学研究和临床实践中，需要全面的自我报告工具来评估慢性皮肤病对健康的广泛影响，包括疾病相关生活质量的一般和皮肤特异性方面。皮肤科专用的多维仪器优于通用仪器或单维生活质量测量的优点在于它们提供了关于受皮肤状况影响的健康区域的详细和具体的信息，并且这些信息可能通过治疗干预而改变。（慢性皮肤病对日常生活的影响，ISDL）。该清单的皮肤病学特定部分评估身体功能的维度，更具体地说，皮肤状况，瘙痒、疼痛和疲劳的身体症状，抓挠反应以及与疾病相关的压力源，如污名化。通用部分测量维度的心理功能，疾病相关的影响，疾病的认知和社会支持，通过现有的量表验证为其他慢性疾病。方法的信度和效度的问卷进行了研究，在不同样本的银屑病和特应性皮炎。结果ISDL显示出较高的信度和重测信度在两个患者组。收敛效度表明与其他验证问卷的中度至强相关性。该量表被证明是敏感的皮肤病紫外线B辐射治疗和认知行为治疗的瘙痒。结论其令人信服的结果的可靠性和有效性，目前的评价支持的有用性和适用性的仪器为不同的慢性皮肤病。
Background In dermatological research and clinical practice, there is a need for comprehensive self-report instruments that assess a broad spectrum of health implications of chronic skin diseases, including generic and skin-specific aspects of disease-related quality of life. The advantages of dermatology-specific, multidimensional instruments over generic instruments or single-dimensional quality-of-life measures are in the detailed and specific information they provide about health areas that are affected by the skin condition and that may change through therapeutic intervention.Objectives The development of a multidimensional health status inventory for chronic skin diseases (Impact of Chronic Skin Disease on Daily Life, ISDL) is described. The dermatology-specific part of the inventory assesses dimensions of physical functioning, more specifically skin status, physical symptoms of itch, pain and fatigue and scratching responses as well as disease-related stressors like stigmatization. The generic part gauges dimensions of psychological functioning, disease-related impact, illness cognitions and social support by means of existing scales validated for other chronic diseases.Methods Reliability and validity of the questionnaire were studied in various samples of patients with psoriasis and atopic dermatitis.Results The ISDL showed high reliability and test-retest reliability in both patient groups. Convergent validity was indicated by moderate to strong correlations with other validated questionnaires. The scales proved sensitive to change both for dermatological ultraviolet B radiation therapy and cognitive behavioural treatment for itching.Conclusion With its convincing results for reliability and validity the present evaluation supports the usefulness and applicability of the instrument for different chronic skin diseases.