Domains of health-related quality of life important to patients with giant cell arteritis
Domains of health-related quality of life important to patients with giant cell arteritis
复制标题
DOI：
10.1002/art.11464
复制
发表时间：
2003-12-15
期刊：
影响因子：
--
通讯作者：
Rubin, HR
中科院分区：
文献类型：
--
作者：
Hellmann, DB;Uhlfelder, ML;Rubin, HR
客观的。确定对巨细胞动脉炎 (GCA) 患者重要的生活质量 (QOL) 方面。方法。我们在录音焦点小组中探讨了受 GCA 影响的生活质量领域。然后，我们通过构建与最常提到的领域相关的问题来创建重要性评级问卷 (IRQ)。在收到 IRQ 的 214 名 GCA 患者中，有 145 名 (68%) 做出了回应。我们计算了响应频率，然后根据选择最重要类别的比例以及平均项目排名对项目进行排名。我们将 IRQ 涵盖的 QOL 领域与简表 12 (SF-12) 中的领域进行了比较。结果。评分最高的生活质量项目是“双眼永久失明”。在前 20 个项目中，有 12 个属于 SF-12.Conclusion 未直接涵盖的领域。我们已经确定了对 GCA 患者重要的生活质量方面。 GCA 中的生活质量评估应包括视力和标准生活质量问卷中未包括的其他领域。
Objective. To determine aspects of quality of life (QOL) important to people with giant cell arteritis (GCA).Methods. We explored the domains of QOL affected by GCA in audiotaped focus groups. We then created an Importance Rating Questionnaire (IRQ) by constructing questions related to the domains most frequently mentioned. Of 214 GCA patients to whom the IRQ was sent, 145 (68%) responded. We calculated frequencies of responses and then ranked items by the proportion selecting the top category of importance and also according to a mean item rank. We compared the domains of QOL covered by the IRQ with those in the Short Form 12 (SF-12).Results. The highest rated QOL item was "losing sight in both eyes permanently." Of the top 20 items, 12 were in domains not covered directly by the SF-12.Conclusion. We have identified aspects of QOL important to GCA patients. Assessment of QOL in GCA should include vision and other domains that are not included in standard QOL questionnaires.