HIV-related stigma among people with HIV and their families: A qualitative analysis
HIV-related stigma among people with HIV and their families: A qualitative analysis
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DOI：
10.1007/s10461-007-9231-x
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发表时间：
2008-03-01
影响因子：
4.4
通讯作者：
Schuster, Mark A.
中科院分区：
文献类型：
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作者：
Bogart, Laura M.;Cowgill, Burton O.;Schuster, Mark A.
我们从多个家庭成员的角度研究了艾滋病毒感染者家庭中耻辱经历的相互关联性。对 33 个家庭（33 个感染艾滋病毒的父母、27 个 18 岁以下儿童、19 个成年儿童和 15 个照顾者）进行了半结构化访谈。家长是从艾滋病毒成本和服务利用研究中抽取的，这是美国艾滋病毒护理人员的代表性样本。所有家庭都讲述了耻辱经历，其中包括 100% 的母亲、88% 的父亲、52% 的儿童、79% 的成年儿童和 60% 的照顾者。约 97% 的家庭描述了对歧视的恐惧，79% 的家庭经历过实际的歧视，10% 的未感染家庭成员因与感染艾滋病毒的父母有联系而遭受耻辱。人际歧视似乎源于对传染的恐惧。研究结果表明，需要采取干预措施来减少公众对艾滋病毒的耻辱，并帮助家庭应对耻辱。
We examined the interconnectedness of stigma experiences in families living with HIV, from the perspective of multiple family members. Semi-structured interviews were conducted with 33 families (33 parents with HIV, 27 children under age 18, 19 adult children, and 15 caregivers). Parents were drawn from the HIV Cost and Services Utilization Study, a representative sample of people in care for HIV in US. All of the families recounted experiences with stigma, including 100% of mothers, 88% of fathers, 52% of children, 79% of adult children, and 60% of caregivers. About 97% of families described discrimination fears, 79% of families experienced actual discrimination, and 10% of uninfected family members experienced stigma from association with the parent with HIV. Interpersonal discrimination seemed to stem from fears of contagion. Findings indicate a need for interventions to reduce HIV stigma in the general public and to help families cope with stigma.