Why caregivers of people with dementia and memory loss don't use services

Why caregivers of people with dementia and memory loss don't use services
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DOI:
10.1002/gps.1322
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发表时间:
2005-06-01
影响因子:
4
通讯作者:
Fine, M
Fine, M
中科院分区:
医学2区
文献类型:
--
作者:
Brodaty, H;Thomson, C;Fine, M

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目的研究社区痴呆或记忆丧失患者护理人员不使用服务的特点,并对不使用服务的原因进行实证调查。方法利用文献综述的结果,开发护理人员不使用服务的排版。这种排版应用于社区护理人员的样本。结果三分之一的护理人员不使用任何服务,四分之一的护理人员只使用一种服务。尽管相当大比例的人报告生活满意度低,超负荷和怨恨程度高,但照顾者给出的不使用服务的主要原因是他们认为自己不需要这些服务。不使用服务的其他原因包括护理对象不愿使用服务、对服务缺乏了解或正在申请服务。服务的可获得性或可负担性没有被确定为服务使用的主要障碍。身体残疾的存在和与社会工作者的接触与服务使用有关。结论痴呆患者的照顾者承受着巨大的压力,对各种服务有很大的需求。然而,许多照护者没有使用支助服务,主要是因为认为缺乏需要或缺乏认识。更好地向公众宣传服务、消除对痴呆症的污名化和鼓励卫生专业人员转诊,有助于克服使用服务的障碍。版权所有(c) 2005 John Wiley & Sons, Ltd。
Objectives To develop a typography of the characteristics of caregivers of community dwelling people with dementia or memory loss who do not use services and empirically investigate the reasons for service non-use.Method The findings of a literature review were used to develop a typography of caregivers' non-use of services. This typography was applied to a sample of community-based caregivers.Results One in three caregivers were using no services and one in four only one service. Despite considerable proportions reporting low levels of life satisfaction and high levels of overload and resentment the main reasons caregivers gave for not using services were that they did not consider they needed the services. Other reasons for service non-use included care recipient reluctance to use services, lack of knowledge of services or being in the process of applying for services. Service availability or affordability were not identified as major impediments to service use. Presence of a physical disability and contact with a social worker were associated with service use.Conclusions Caregivers of people with dementia incur significant strain and have substantial need for a variety of services. Nevertheless many caregivers were not using support services, mainly because of perceived lack of need or lack of awareness. Better public promotion of services, destigmatising dementia and encouraging referrals from health professionals could help overcome the barriers to service use. Copyright (c) 2005 John Wiley & Sons, Ltd.