Advancing Care for Family Caregivers of persons with dementia through caregiver and community partnerships.
Advancing Care for Family Caregivers of persons with dementia through caregiver and community partnerships.
复制标题
通过护理人员和社区伙伴关系，为患有痴呆症患者的家庭护理人员提供护理。
DOI：
10.1186/s40900-018-0084-4
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发表时间：
2018
影响因子：
--
通讯作者：
Cleveland J
中科院分区：
文献类型：
--
作者：
White CL;Overbaugh KJ;Pickering CEZ;Piernik-Yoder B;James D;Patel DI;Puga F;Ford L;Cleveland J
目前有1500万美国人提供超过80%的照顾他们的家庭成员所需的阿尔茨海默氏症和其他痴呆症。然而，对照顾者的护理仍然是零散的，很少有循证干预措施被转化为常规临床护理，因此大多数家庭照顾者仍然无法获得。为了解决这一差距，照顾照顾者计划正在开发UT健康圣安东尼奥，护理学院，以改善支持服务和家庭照顾者的健康结果。我们的目的是描述参与过程中进行评估照顾者和社区的需求，以及如何发现告知程序的发展。我们正在使用一种公众参与模式，包括信息交流、从利益相关者收集信息以及合作，其中利益相关者是信息交换的合作伙伴，以指导计划活动。对社区进行了评估，以确定家庭照顾者的资源/服务。随后，邀请利益攸关方参加社区-学术论坛，讨论如何利用现有的家庭支持优势，并找出护理方面的差距。进行了详细的记录，并对所有讨论进行了记录和转录，以供分析。使用主题内容分析法对数据进行分析。我们对15个社区机构进行了实地考察，采访了13名家庭护理人员，并参加了社区活动，包括支持小组和健康与老年人博览会。53个不同的利益攸关方参加了社区-学术论坛。与会者确定了我们社区内的现有资产，以支持家庭照顾者。各群体一致认为，需要提高我们社区对家庭照顾者的认识。从讨论中确定的主题是：使不可见的可见，你不知道你不知道什么，学习太晚，以及预测和准备未来。照顾者和社区利益相关者的沟通对于确保我们社区的优先事项在针对家庭照顾者的文化响应无障碍计划中得到解决至关重要。该论坛是与社区合作的重要机制，将成为年度活动，我们可以继续与利益相关者围绕实践，教育和研究的需求进行合作。
There are currently 15 million Americans who provide over 80% of the care required by their family members with Alzheimer’s disease and other dementias. Yet care for caregivers continues to be fragmented and few evidence-based interventions have been translated into routine clinical care and therefore remain inaccessible to most family caregivers. To address this gap, the Caring for the Caregiver program is being developed at UT Health San Antonio, School of Nursing to improve support services and health outcomes for family caregivers. Our purpose is to describe the engagement process undertaken to assess caregiver and community needs and how findings are informing program development. We are using a model of public engagement that consists of communication of information, collection of information from stakeholders, and collaboration where stakeholders are partners in an exchange of information to guide program activities. An assessment of the community was undertaken to identify resources/services for family caregivers. Subsequently, stakeholders were invited to a community-academic forum to discuss strategies to build on existing strengths for family caregiving and to identify gaps in care. Detailed notes were taken and all discussions were recorded and transcribed for analysis. Data were analyzed using thematic content analysis. We conducted site visits with 15 community agencies, interviewed 13 family caregivers, and attended community events including support groups and health and senior fairs. Fifty-three diverse stakeholders attended the community-academic forum. Participants identified existing assets within our community to support family caregivers. Consistent among groups was the need to increase awareness in our community about family caregivers. Themes identified from the discussion were: making the invisible visible, you don’t know what you don’t know, learning too late, and anticipating and preparing for the future. Incorporating caregiver and community stakeholders was critical to ensure that the priorities of our community are addressed in a culturally responsive accessible program for family caregivers. The forum served as important mechanism to partner with the community and will be an annual event where we can continue to work with our stakeholders around needs for practice, education, and research.