Caregiver and Health Care Provider Perspectives on Cloud-Based Shared Care Plans for Children With Medical Complexity.
Caregiver and Health Care Provider Perspectives on Cloud-Based Shared Care Plans for Children With Medical Complexity.
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DOI：
10.1542/hpeds.2017-0242
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发表时间：
2018-07-01
影响因子：
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通讯作者：
Britto, Maria T
中科院分区：
文献类型：
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作者：
Desai, Arti D;Jacob-Files, Elizabeth A;Britto, Maria T
目的：共享护理计划在协调医疗保健提供者和医疗复杂性儿童（CMC）的护理方面发挥着至关重要的作用。然而，现有的护理计划往往缺乏共同所有权，过时，缺乏普遍的可及性。在这项研究中，我们的目的是建立要求共享护理计划，以满足护理人员和供应商的信息需求，并减轻目前的信息障碍时，照顾CMC.METHODS：我们遵循以用户为中心的设计方法，并进行了深入的半结构化访谈的护理人员和供应商的CMC谁接受护理在三级保健儿童医院。我们应用归纳，主题分析，以确定突出的主题。分析同时发生的数据收集，因此，面试指南反复修订为新的问题和主题emerging.RESULTS：17照顾者和22供应商进行了采访。根据参与者的观点，我们确定了共享护理计划的4项要求，这将有助于满足信息需求并减轻护理CMC时当前的信息障碍。这些要求包括：（1）支持从多个地点获得护理计划（例如，基于云的）和来自多个设备，具有警报和搜索功能;（2）确保组织适合特定用户;（3）包括协作功能，例如实时，多用户内容管理和安全消息传递;和（4）存储在一个安全的平台上的护理计划与管理员控制的权限settings.CONCLUSIONS：虽然需要进一步的研究，以了解最佳的设计和实施策略，共享护理计划，满足这些规定的要求，可以减轻感知的信息障碍，提高护理CMC。
OBJECTIVES: Shared care plans play an essential role in coordinating care across health care providers and settings for children with medical complexity (CMC). However, existing care plans often lack shared ownership, are out-of-date, and lack universal accessibility. In this study, we aimed to establish requirements for shared care plans to meet the information needs of caregivers and providers and to mitigate current information barriers when caring for CMC.METHODS: We followed a user-centered design methodology and conducted in-depth semistructured interviews with caregivers and providers of CMC who receive care at a tertiary care children's hospital. We applied inductive, thematic analysis to identify salient themes. Analysis occurred concurrently with data collection; therefore, the interview guide was iteratively revised as new questions and themes emerged.RESULTS: Interviews were conducted with 17 caregivers and 22 providers. On the basis of participant perspectives, we identified 4 requirements for shared care plans that would help meet information needs and mitigate current information barriers when caring for CMC. These requirements included the following: (1) supporting the accessibility of care plans from multiple locations (eg, cloud-based) and from multiple devices, with alert and search features; (2) ensuring the organization is tailored to the specific user; (3) including collaborative functionality such as real-time, multiuser content management and secure messaging; and (4) storing care plans on a secure platform with caregiver-controlled permission settings.CONCLUSIONS: Although further studies are needed to understand the optimal design and implementation strategies, shared care plans that meet these specified requirements could mitigate perceived information barriers and improve care for CMC.