Hospital care or home care after allogeneic hematopoietic stem cell transplantation - Patients' experiences of care and support
Hospital care or home care after allogeneic hematopoietic stem cell transplantation - Patients' experiences of care and support
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DOI：
10.1016/j.ejon.2012.12.004
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发表时间：
2013-08-01
影响因子：
2.8
通讯作者：
Svahn, Britt-Marie
中科院分区：
文献类型：
--
作者：
Bergkvist, Karin;Larsen, Joacim;Svahn, Britt-Marie
目的：自1998年以来，异基因造血干细胞移植（HSCT）后全血细胞减少期的家庭治疗一直是我们中心患者的一种选择。早期研究表明，家庭护理是安全的，并且具有医疗优势。在这项研究中，我们提出了患者的护理和支持的经验，而在医院或在家里治疗急性移植后phase.Method：患者（n = 41，22在医院护理和19在家庭护理）回答了SAUC问卷在出院时（在家，或从医院）。结果：患者对移植术后急性期护理支持的满意度较高。在家庭护理的患者被发现更满意的护理一般比患者在医院护理。无论在哪里进行护理，都表达了安全、同情和医护人员鼓励的重要性。患者还认为，在治疗过程中不断收到，更新的信息是重要的，他们有一个强烈的信念，在HSCT，但不确定的未来关于recovery.Conclusions：这项研究的主要结果是，在医院护理相比，家庭护理似乎并没有显着的负面影响，对患者的护理和支持的经验，在急性移植后阶段。此外，家庭护理中的患者感到安全，被视为一个人和鼓励似乎赋予患者在家的权力。因此，这项研究可能会鼓励其他移植中心提供家庭护理，如果患者需要的话。（C）2012爱思唯尔有限公司保留所有权利。
Purpose: Treatment at home during the pancytopenic phase after allogeneic hematopoietic stem cell transplantation (HSCT) has been an option for patients at our center since 1998. Earlier studies have shown that home care is safe and has medical advantages. In this study, we present patients' experiences of care and support while being treated in hospital or at home during the acute post-transplantation phase.Method: Patients (n = 41, 22 in hospital care and 19 in home care) answered the SAUC questionnaire at discharge (when home, or from hospital). Both statistical analysis and deductive content analysis were used.Results: The patients were highly satisfied with the care and support during the acute post-transplantation phase. Patients in home care were found to be more satisfied with care in general than patients in hospital care. The importance of safety, empathy, and encouragement from healthcare staff were expressed regardless of where care was given. Patients also felt that receipt of continuous, updated information during treatment was important and they had a strong belief in HSCT but were uncertain of the future regarding recovery.Conclusions: The main findings of this study were that in comparison to hospital care, home care does not appear to have a significant negative effect on patients' experiences of care and support during the acute post-transplantation phase. In addition patients in home care felt safe, seen as a person and encouragement seem to empower the patients at home. Thus, this study may encourage other transplantation centers to provide home care if the patients want it. (C) 2012 Elsevier Ltd. All rights reserved.