Understanding the experiences and perspectives of prenatal screening among a diverse cohort.
Understanding the experiences and perspectives of prenatal screening among a diverse cohort.
复制标题
了解不同群体中产前筛查的经验和观点。
DOI：
10.1002/pd.6297
复制
发表时间：
2023
影响因子：
3
通讯作者：
Rothwell,Erin
中科院分区：
文献类型：
--
作者：
Riches,NaomiO;Johnson,ErinP;Subramaniam,Akila;Vora,NeetaL;Hardisty,Emily;LaRiviere,Kate;Rothwell,Erin
产前遗传筛查技术的快速发展使提供者难以提供充分的产前咨询。本研究的目的是了解产前筛查教育方法如何满足患者的需求。方法对不同人群进行定性内容分析，探讨他们对产前筛查教育交付的感知体验和偏好。结果对来自美国三个网站的22名女性进行了访谈。参与者具有种族/民族多样性，其中22.7%为黑人或非裔美国人（n= 5）， 40.9%为西班牙裔（n= 9）， 4.5%为太平洋岛民（n= 1）。确定了四个主题：产前筛查教育，产前筛查决策，结果返回，以及创建决策援助的建议。大多数结果与之前没有针对不同人群的研究一致。讨论/结论我们的研究结果表明，不同患者的学习风格偏好不同，目前的方法并不能始终满足患者对理解的渴望，特别是在“高风险”的结果中，这表明标准化的工具可以提高知识水平，减少决策冲突。这个多样化的队列建议列出和描述所提供的每个测试选项，筛选的每种情况的信息，测试和结果返回的时间表，相关成本和非技术语言。
IntroductionRapid advances in prenatal genetic screening technology make it difficult for providers to deliver adequate prenatal counseling. The aim of this study was to understand how prenatal screening educational approaches can meet the needs of patients.MethodsQualitative content analysis was conducted on a diverse population who were interviewed to explore their perceived experiences and preferences for prenatal screening educational delivery.ResultsTwenty‐two women from three US sites were interviewed. Participants were racially/ethnically diverse with 22.7% identifying as Black or African American (n= 5), 40.9% as Hispanic (n= 9), and 4.5% as Pacific Islander (n= 1). Four themes were identified: prenatal screening education, prenatal screening decision‐making, return of results, and suggestions for creating a decision aid. Most results were consistent with previous research not targeting a diverse population.Discussion/ConclusionOur results indicate that learning style preferences vary between patients and that current methods are not consistently satisfying patient's desire for understanding, particularly with ‘high‐risk’ results, suggesting that a standardized tool could improve knowledge and decrease decisional conflict. This diverse cohort suggested a list and description of each of the testing options offered, information about each condition being screened for, a timeline for the testing and return of results, costs associated, and non‐technical language.