Recruitment and attrition in twin register studies of childhood behavior: The example of the Australian Twin ADHD Project
Recruitment and attrition in twin register studies of childhood behavior: The example of the Australian Twin ADHD Project
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DOI：
10.1375/twin.5.5.324
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发表时间：
2002-10-01
期刊：
影响因子：
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通讯作者：
Pearsall-Jones, J
中科院分区：
文献类型：
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作者：
Hay, DA;McStephen, M;Pearsall-Jones, J
这里有越来越多的大规模的双胎儿童登记活动。澳大利亚双胞胎多动症项目（ATAP）被用来说明这类研究可能出现的两个关键限制，即(1)包括或可能排除双胞胎中一个或两个有明显发育障碍的家庭的重要性，以及(2)选择性地招募失败和/或选择性地减少父母和孩子都有行为困难的家庭。最初，ATAP排除了六分之一的双胞胎家庭，这些双胞胎家庭登记在以志愿者为基础的澳大利亚双胞胎登记处（ATR），随着越来越多的孩子被发现有重大问题，这些家庭被依次排除。通过超过十年的纵向数据，我们确定了关于记忆的两点：在青春期后期记忆双胞胎的困难，以及双胞胎有更多ADHD症状的家庭的损失。我们讨论了限制家庭损失的策略，以及确保具有相似兴趣但不同招募和排除方法的登记册之间数据的可比性。
here are a growing number of large-scale initiatives for twin registers of children. The Australian Twin ADHD Project (ATAP) is used to illustrate two key limitations which may arise with such studies, namely (1) the importance of including or possibly excluding families in which one or both twins have significant developmental disability, and (2) the selective failure to recruit and/or the selective attrition of families in which parents and children share behavioral difficulties. Initially ATAP excluded 1 in 6 of families whose twins were enrolled in the volunteer-based Australian Twin Registry (ATR), and as more children with significant problems were identified, these families were sequentially excluded. With longitudinal data over ten years, two points about retention were identified: the difficulty of retaining the twins in late adolescence, and the loss of the families whose twins had more ADHD symptoms. We discuss strategies for limiting the loss of families and for ensuring comparability of data across registers with similar interests but different methods of recruitment and exclusion.