The National LGBT Cancer Action Plan: A White Paper of the 2014 National Summit on Cancer in the LGBT Communities

The National LGBT Cancer Action Plan: A White Paper of the 2014 National Summit on Cancer in the LGBT Communities
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DOI:
10.1089/lgbt.2015.0118
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发表时间:
2016-02-01
期刊:
影响因子:
4.8
通讯作者:
Maingi, Shail
Maingi, Shail
中科院分区:
医学2区
文献类型:
--
作者:
Burkhalter, Jack E.;Margolies, Liz;Maingi, Shail

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尽管社会对女同性恋、男同性恋、双性恋和变性人(LGBT)的接受程度越来越高,同性伴侣的婚姻权利也得到了扩展,但LGBT群体仍面临着耻辱和歧视,包括在医疗保健系统内。由于普遍存在的重大癌症风险因素,如吸烟和人类免疫缺陷病毒感染,LGBT群体中的每个人患癌症的风险都可能升高;然而,缺乏LGBT人群的癌症发病率和死亡率数据。癌症发病率数据的缺失阻碍了研究和政策制定、LGBT社区的意识和激活,以及解决癌症差异的干预措施。在这种背景下,2014年,一个计划委员会召开了为期两天的全国LGBT社区癌症峰会,目的是加快确定和解决LGBT社区在癌症研究、临床癌症护理、医疗保健政策、倡导癌症幸存者和LGBT健康平等等领域的关注和需求。峰会的参与者是来自美国、英国和加拿大的56名受邀人士,他们代表着不同的身份、经历和对LGBT社区和癌症的了解。参与者分享了经验教训,并确定了从预防到生存的整个癌症护理过程中对LGBT癌症关注的差距和补救措施。本白皮书介绍了每个峰会主题的背景和16项建议,涵盖以下内容:性取向和性别认同数据在全国和州健康调查和LGBT社区与癌症研究中的收集,LGBT人群的临床护理,以及医疗保健提供者的教育和培训。
Despite growing social acceptance of lesbians, gay men, bisexuals, and transgender (LGBT) persons and the extension of marriage rights for same-sex couples, LGBT persons experience stigma and discrimination, including within the healthcare system. Each population within the LGBT umbrella term is likely at elevated risk for cancer due to prevalent, significant cancer risk factors, such as tobacco use and human immunodeficiency virus infection; however, cancer incidence and mortality data among LGBT persons are lacking. This absence of cancer incidence data impedes research and policy development, LGBT communities' awareness and activation, and interventions to address cancer disparities. In this context, in 2014, a 2-day National Summit on Cancer in the LGBT Communities was convened by a planning committee for the purpose of accelerating progress in identifying and addressing the LGBT communities' concerns and needs in the spheres of cancer research, clinical cancer care, healthcare policy, and advocacy for cancer survivorship and LGBT health equity. Summit participants were 56 invited persons from the United States, United Kingdom, and Canada, representatives of diverse identities, experiences, and knowledge about LGBT communities and cancer. Participants shared lessons learned and identified gaps and remedies regarding LGBT cancer concerns across the cancer care continuum from prevention to survivorship. This white paper presents background on each of the Summit themes and 16 recommendations covering the following: sexual orientation and gender identity data collection in national and state health surveys and research on LGBT communities and cancer, the clinical care of LGBT persons, and the education and training of healthcare providers.