Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary

Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary
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DOI:
10.1111/opn.12021
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发表时间:
2014-09-01
影响因子:
2.2
通讯作者:
Slevin, Eamonn
Slevin, Eamonn
中科院分区:
医学3区
文献类型:
--
作者:
Ryan, Assumpta;Taggart, Laurence;Slevin, Eamonn

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背景。随着全球人口变化和人口老龄化,智障人士的寿命越来越长,所有证据都表明这一趋势将持续下去。这个由老年人及其护理人员组成的“新”群体将为健康和社会护理提供者带来挑战。目标。本文综述了影响智障老年人及其老年家庭照顾者护理的关键问题的文献。方法。审查是使用 NHS 审查和传播中心改编的框架进行的。论文是通过使用 CINAHL、Science Direct、PsychoInfo、Blackwell Synergy、Cochrane Library 和 MEDLINE.Findings 等数据库来确定的。从文献中出现并构成本次审查基础的关键主题包括:老年家庭照顾者、未来规划和支持服务。在家庭照顾方面,智障老年人是一个独特的群体,因为他们不太可能结婚,因此没有配偶或家属来照顾他们的晚年生活。因此,随着年龄的增长,父母(通常是母亲)必须继续照顾患有智力障碍的儿子或女儿,这往往会导致相互依赖的关系。由于紧急情况和未来规划不善,以及缺乏针对这一群体的适当服务,护理情况变得更加复杂。结论。鉴于“新”智障老年人口的出现,迫切需要开发服务和支持结构,使这些人及其老年护理人员能够“就地养老”,当这种情况不再可能时,需要有适当的替代方案,承认他们作为老年人和智障人士的双重需求。对实践的启示。监督机会可能是提高个人对自己在团队中角色的认识的一种方式。
Background. In keeping with worldwide demographic changes and an ageing population, people with intellectual disabilities are living longer and all the evidence suggest that this trend will continue. This 'new' population of older people and their carers will pose challenges for health and social care providers.Aim. This paper presents a review of the literature on key issues influencing caregiving for older people with intellectual disabilities and their ageing family carers.Methods. The review was undertaken using a framework adapted from the NHS Centre for Reviews and Dissemination. Papers were identified through the use of databases including CINAHL, Science Direct, PsychoInfo, Blackwell Synergy, the Cochrane Library and MEDLINE.Findings. The key themes which emerged from the literature and which consequently form the basis of this review include: ageing family carers, future planning and support services. In the context of family caregiving, older people with intellectual disabilities represent a unique group insofar as they are unlikely to be married and therefore have no spouse or dependents to care for them in later life. As a result, parents (usually mothers) have to continue caring for their son or daughter with an intellectual disability as they both grow older, often resulting in a mutually dependent relationship. The caregiving situation is further complicated by poor emergency and future planning and by a lack of appropriate services for this group of individuals.Conclusions. In light of the emergence of a 'new' population of older people with intellectual disabilities, there is an urgent need to develop services and support structures which will enable these individuals and their ageing carers to 'age in place' and when this is no longer possible, to have appropriate alternatives that recognise the duality of their needs as older people and as people with intellectual disabilities.Implications for Practice. Opportunities for supervision could be one way to increase individuals' awareness of their own role in the team.