Social and emotional problems in children with neurofibromatosis type 1: Evidence and proposed interventions
Social and emotional problems in children with neurofibromatosis type 1: Evidence and proposed interventions
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DOI：
10.1016/s0022-3476(99)70296-9
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发表时间：
1999-06-01
影响因子：
5.1
通讯作者：
Schorry, EK
中科院分区：
文献类型：
--
作者：
Johnson, NS;Saal, HM;Schorry, EK
目的：描述儿童和青少年I型神经纤维瘤病（NF 1）的社会和情绪问题，并提出干预措施。我们的假设是，与正常儿童和正常儿童相比，NF 1儿童的社会和情感问题明显更多。（5至18岁）进行了评估，由家长和教师完成标准化测试结果：与NF 1的其他方面一样，有可变的表达性。然而，当父母评定时，与测试规范或未受影响的兄弟姐妹相比，NF 1儿童在8个量表中的7个量表上存在更多问题：社会问题，注意力问题，焦虑/抑郁，退缩，思维问题，躯体抱怨和攻击行为。NF 1儿童在评估运动和其他活动方面的得分也低于未受影响的兄弟姐妹。教师报告较少difference.Conclusions：我们建议干预的形式为家长的信息;早期筛查和治疗的语言，运动和认知问题;和增加干预水平，以预防和治疗心理问题，包括系统的标准化测试筛查。
Objective: To describe social and emotional problems in children and adolescents with neurofibromatosis type I (NF1) and propose interventions. Our hypothesis is that children with NF1 will have significantly more social and emotional problems, compared with their unaffected siblings and children in the general population.Study design: Ferry-three children with NF1 and 22 unaffected siblings (ages 5 to 18 years) were assessed with a standardized test completed by parents and teachers (the Child Behavior Checklist).Results: As with other aspects of NF1, there was variable expressivity. However, when rated by parents, children with NF1 had significantly more problems in comparison with test norms or unaffected siblings on 7 of 8 scales: Social Problems, Attention Problems, Anxiety/Depression, Withdrawal, Thought Problems, Somatic Complaints, and Aggressive Behavior. Children with NF1 also scored lower than unaffected siblings on measures assessing sports and other activities. Teachers reported fewer differences.Conclusions: We propose interventions in the form of information for parents; early screening and treatment for speech, motor, and cognitive problems; and an increased level of intervention to prevent and treat psychologic problems, including systematic screening with standardized tests.