Unpacking the Infrastructuring Work of Patients and Caregivers around the World
Unpacking the Infrastructuring Work of Patients and Caregivers around the World
复制标题
解开世界各地患者和护理人员的基础设施工作
DOI：
10.1145/3290607.3299021
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发表时间：
2019
期刊：
影响因子：
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通讯作者：
Bernd Ploderer
中科院分区：
文献类型：
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作者：
Yunan Chen;N. Verdezoto;Xinning Gui;Xiaojuan Ma;Claus Bossen;Naveen Bagalkot;Valeria Herskovic;Bernd Ploderer
世界各地的许多医疗保健系统都被认为是分散的，复杂的和低质量的，让患者和护理人员别无选择，只能从事“基础设施工作”，使其为他们发挥作用。然而，病人为建立其正常运作的卫生服务系统所做的工作往往是无形的，可用于帮助他们的资源和技术很少。本次研讨会旨在汇集研究人员，卫生从业人员和患者，以检查，讨论和集思广益的方式，从患者和护理人员的角度重新设想我们的医疗服务系统。我们的目标是解开患者和护理人员重新配置，重建和适应医疗基础设施所做的工作类型，并集思广益设计解决方案，为他们提供更好的基础设施帮助。
Many healthcare systems around the world are noted as fragmented, complex and low-quality, leaving patients and caregivers with no choice but to engage in "infrastructuring work" to make it function for them. However, the work patients do to construct their functioning health service systems often remain invisible, with very little resources and technologies available to assist them. This workshop aims to bring together researchers, health practitioners, and patients to examine, discuss, and brainstorm ways to re-envision our healthcare service systems from the perspective of patients and caregivers. We aim to unpack the types of work that patients and caregivers do to reconfigure, reconstruct and adapt the healthcare infrastructure, and to brainstorm design solutions that can provide better infrastructuring assistance to them.