The development of a web-based resource to provide information and psychosocial support to informal cancer carers in hospitals in Vietnam
The development of a web-based resource to provide information and psychosocial support to informal cancer carers in hospitals in Vietnam
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DOI：
10.1002/pon.5368
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发表时间：
2020-05-01
期刊：
影响因子：
3.6
通讯作者：
Ho, Hien T.
中科院分区：
文献类型：
--
作者：
Santin, Olinda;Jenkins, Chris;Ho, Hien T.
目标 与许多低/中等收入国家一样，越南缺乏向癌症患者及其护理人员提供信息和社会心理支持的基础设施。我们采用了协同设计流程来开发网络资源，为护理人员提供信息和支持。方法通过 2018 年在越南举行的五个焦点小组 (n = 39) 和半结构化访谈 (n = 4) 探讨癌症护理人员和医疗保健专业人员对信息和支持需求以及基于网络的支持的内容和交付的看法。焦点小组和访谈均逐字记录并使用主题分析进行分析。资源组成部分在 40 名参与者参加的两次联合利益相关者研讨会上进行了验证。结果 基于网络的资源的开发被确定为迫切需要。基于网络的资源被视为以可持续方式提供跨区域支持的合适界面。资源的结构应包括同行主导的视频建议、服务路标并包括官方认可。已确定的潜在资源组成部分包括 (a) 癌症原因和后果； (b) 医院管理、治疗流程和价格； (c) 日常生活； (d) 情感和支持信息； (e) 技能培训； (f) 营养和传统医学。 结论 越南迫切需要开发一个网络资源，为癌症护理人员和代理患者提供信息和社会心理支持。下一步将包括资源开发和测试资源能力，以满足癌症护理人员和患者未满足的需求。支持癌症护理人员的基于网络的资源有可能应用于其他发展中国家。
Objective Vietnam, like many low/middle income countries, lacks the infrastructure to provide information and psychosocial support to cancer patients and their carers. We undertook a codesign process to develop a web resource to inform and support carers.Methods Cancer carers and health care professionals' perspectives regarding information and support needs and the content and delivery of web-based supports, were explored via five focus groups (n = 39) and semistructured interviews (n = 4) in Vietnam in 2018. Focus groups and interviews were transcribed verbatim and analyzed using thematic analysis. Resource components were verified at two joint stakeholder workshops attended by 40 participants.Results The development of a web-based resource was identified as an urgent need. A web-based resource was viewed as a suitable interface to provide support across regions in a sustainable way. The structure of the resource should include peer-led videoed advice, signposting to services and include official endorsement. The potential resource components identified includes (a) cancer causes and consequences; (b) hospital administration, treatment processes, and prices; (c) daily living; (d) emotional and supportive information; (e) skills training; and (f) nutrition and traditional medicine.Conclusion The development of a web-based resource to deliver information and psychosocial supports to cancer carers and by-proxy patients is an urgent requirement in Vietnam. Next steps will include resource development and testing the resources ability to address the unmet needs of cancer carers and patients. A web-based resource to support cancer carers has the potential for application to other developing countries.