Partnered decision support: Parental perspectives of completing a pre-visit pediatric asthma questionnaire via the patient portal.

Partnered decision support: Parental perspectives of completing a pre-visit pediatric asthma questionnaire via the patient portal.
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DOI:
10.1002/ppul.25735
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发表时间:
2022-01
影响因子:
3.1
通讯作者:
Ryan G
Ryan G
中科院分区:
医学3区
文献类型:
--
作者:
Ross MK;Friedman S;Radparvar I;Ryan G

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收集患者报告的数据已被证明可以改善哮喘结果。收集信息的一种方法是通过电子患者门户网站。在实践中,患者门户在儿科中的使用,特别是在哮喘管理中的使用,一直没有得到很好的利用。了解父母/照顾者在儿童哮喘护理管理方面的经验,以及在就诊前对患者门户问卷使用的认知。我们对加州大学洛杉矶分校卫生系统中5-11岁哮喘儿童的照顾者进行了半结构化访谈。我们包括患者门户网站“用户”(n=20)和“非用户”(n=5)。访谈问题是基于临床访问工作流程开发的,重点是在访问之前在患者门户中完成儿童哮喘问卷的感知有用性和易用性。访谈被录音、转录,并通过不断的比较分析从主题中生成代码。我们确定了与护理者-医生沟通、门户问卷感知、促进者和门户问卷使用障碍相关的八个主题。一个突出的发现是,照顾者认为门户网站问卷是一种工具,可以整合到访问中,以促进关于他们孩子哮喘的对话。如果护理人员可以访问正在输入的数据以跟踪和更新,并且如果护理人员得到保证,临床医生将在访问期间使用问卷答复,则更有可能使用基于护理人员门户的调查问卷。哮喘儿童的照顾者更有可能在访问前完成患者门户网站入院调查问卷,如果他们相信他们的回答会在访问期间被用来告知护理人员。
Collection of patient-reported data has been demonstrated to improve asthma outcomes. One method to collect information is through the electronic patient portal. In practice, patient portal use in pediatrics and, specifically for asthma management, has had low uptake. To understand parental/caregiver experience of pediatric asthma care management, and perceptions of the use of patient portal questionnaires before the clinic visit. We conducted semi-structured interviews with caregivers of children 5-11 years old with asthma in the UCLA Health System. We included patient portal “users” (n=20) and “non-users” (n=5). Interview questions were developed based on clinic visit workflow with a focus on perceived usefulness and ease of use to complete pediatric asthma questionnaires in the patient portal before the visit. Interviews were audio-recorded, transcribed, and codes were generated from themes using constant comparative analysis. We identified eight themes related to caregiver-physician communication, perception of portal questionnaires, facilitators, and barriers to portal questionnaire use. A salient finding was that caregivers considered the portal questionnaire as a tool to be integrated into the visit to facilitate a conversation about their child’s asthma. Caregiver portal-based questionnaire use was more likely if the ongoing data entered was accessible to caregivers to track and update, and if caregivers were reassured the clinicians would use questionnaire responses during the visit. Caregivers of children with asthma are more likely to complete a patient portal intake questionnaire before the visit if they trust their responses will be used during the visit to inform care.
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