Putting Families in the Center: Family Perspectives on Decision Making and ADHD and Implications for ADHD Care
Putting Families in the Center: Family Perspectives on Decision Making and ADHD and Implications for ADHD Care
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DOI：
10.1177/1087054711413077
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发表时间：
2012-11-01
影响因子：
3
通讯作者：
Leslie, Laurel K.
中科院分区：
文献类型：
--
作者：
Davis, Catherine C.;Claudius, Milena;Leslie, Laurel K.
目的：探讨以家庭为中心的护理在家庭对ADHD患儿的治疗决策中的组成部分。方法：28个家庭参加了定性访谈，讨论了家庭对(a)治疗决策过程，(b)孩子症状的原因和影响，以及(c)治疗目标和偏好的看法。结果：大多数家庭倾向于成为治疗决策的主要决策者或共同决策者。家庭对儿童症状原因的看法各不相同，而且往往与生物医学框架不一致。家庭描述了儿童、家庭关系和家庭功能受损的多个领域。对循证治疗的看法不一，家庭也表达了对当前治疗指南中未描述的干预措施的兴趣和追求。结论：这些发现强调了吸引家庭观点的重要性，并使这些重要的利益相关者参与共同决策，作为以家庭为中心的ADHD儿童护理的关键组成部分。（美国医学杂志，2012;16(8)675-684）
Objective: To examine components of family-centered care in families' stories about treatment decision making for their child with ADHD. Method: Twenty-eight families participated in qualitative interviews that addressed families' perspectives on (a) the treatment decision-making process, (b) the cause and impact of their child's symptoms, and (c) treatment goals and preferences. Results: The majority of families preferred to be primary or shared decision makers regarding treatment decisions. Families' perspectives on the cause of the child's symptoms varied and often were not consistent with a biomedical framework. Families described multiple areas of impairment on child, family relationships, and family functioning. Perspectives toward evidence-based treatments were mixed, with families also expressing interest in and pursuing interventions not delineated in current treatment guidelines. Conclusion: These findings reinforce the importance of eliciting families' perspectives and involving these important stakeholders in shared decision making as critical components of family-centered care for children with ADHD. (J. of Att. Dis. 2012; 16(8) 675-684)