Pregnancy registries: Differences, similarities, and possible harmonization
Pregnancy registries: Differences, similarities, and possible harmonization
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DOI：
10.1111/j.1528-1167.2010.02525.x
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发表时间：
2010-05-01
期刊：
影响因子：
5.6
通讯作者：
French, Jacqueline
中科院分区：
文献类型：
--
作者：
Tomson, Torbjorn;Battino, Dina;French, Jacqueline
P>；癫痫和怀孕登记处已经运行了10多年，积累了相当多的经验，收集了大量数据。随着调查结果的公布，必须了解来自不同登记册的意见如何具有可比性，特别是因为它们的方法略有不同。2008年9月，英国癫痫和妊娠登记处、北美AED妊娠登记处(NAAPR)以及欧洲和国际孕期抗癫痫药物登记处(EURAP)的代表参加了一次研讨会。他们的目标是交流关于其方法的信息，并讨论可能进行协调的领域。本报告总结了这些讨论。
P>Epilepsy and pregnancy registries have been operational for more than 10 years, have accrued considerable experience, and collected an impressive amount of data. As findings have been published, it has become important to understand how observations from the different registries are comparable, especially since their methodologies differ somewhat. In September 2008, representatives of the UK Epilepsy and Pregnancy Register, the North American AED Pregnancy Registry (NAAPR), and the European and International Registry of Antiepileptic Drugs in Pregnancy (EURAP) met for a workshop. Their objectives were to exchange information on their methodologies and to discuss areas where harmonization might be possible. This report summarizes these discussions.