Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
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DOI：
10.1002/acr2.11204
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发表时间：
2021-01
影响因子：
3.4
通讯作者：
Vasculitis Patient‐Powered Research Network
中科院分区：
文献类型：
--
作者：
Banerjee S;George M;Young K;Venkatachalam S;Gordon J;Burroughs C;Curtis D;Ferrada M;Gavigan K;Grayson PC;Kullman J;Danila MI;Curtis JR;Shaw DG;Benjamin Nowell W;Merkel PA;Vasculitis Patient‐Powered Research Network
本研究旨在分析北美 2019 年冠状病毒病 (COVID-19) 大流行早期阶段血管炎患者的担忧和健康相关行为。北美血管炎患者受邀通过血管炎患者支持研究网络与血管炎基金会和复发性多软骨炎基金会合作完成一项在线调查。问题集中在与医生就诊、检查、药物和远程医疗使用相关的担忧和行为。确定了影响他们的关注和健康相关行为的因素。纳入了 662 名患者的数据：90% 的患者是白人，78% 是女性，83% 的患者对 COVID-19 表示中度或高度的担忧，87% 的患者报告说他们的血管炎中度或极大地影响了他们的担忧程度。年龄较大、女性、肺部疾病和免疫抑制与更严重的担忧相关。分别有 66%、46% 和 40% 的患者避免就诊、实验室检查和其他检查。年龄较小、位于城市、收入较高、关注程度较高和泼尼松使用（> 10 毫克/天）与避免就诊或检查的可能性较大相关。百分之十接受免疫抑制治疗的患者停止了用药。 29% 的利妥昔单抗患者避免了输注。 44% 的患者进行了远程医疗就诊；与美国相比，年轻患者、服用糖皮质激素的患者以及加拿大的就诊次数更多。在 COVID-19 大流行期间，血管炎患者受到高度关注，并表现出潜在有害的健康相关行为。不同人口群体和地理区域的医疗保健使用情况各不相同。需要采取具体策略来促进这些患者在大流行期间参与医疗保健系统。
This study aimed to analyze the concerns and health‐related behaviors in patients with vasculitis during the early phase of the coronavirus disease 2019 (COVID‐19) pandemic in North America. Patients with vasculitis in North America were invited to complete an online survey through the Vasculitis Patient‐Powered Research Network in collaboration with the Vasculitis Foundation and the Relapsing Polychondritis Foundation. Questions focused on concerns and behaviors related to doctors’ visits, tests, medication, and telehealth use. Factors affecting their concern and health‐related behaviors were determined. Data from 662 patients were included: 90% of patients were White, 78% were women, 83% expressed moderate or high levels of concern about COVID‐19, and 87% reported that their vasculitis moderately or extremely affected their level of concern. Older age, female sex, lung disease, and immunosuppression were associated with greater concern. Doctors’ visits, laboratory tests, and other tests were avoided by 66%, 46%, and 40% of patients, respectively. Younger age, urban location, higher income, higher concern levels, and prednisone use (>10 mg/day) were associated with greater likelihood of avoiding visits or tests. Ten percent of patients on immunosuppressive therapy stopped their medication. Twenty‐nine percent patients on rituximab avoided an infusion. Forty‐four percent of patients had telehealth visits; more visits were reported for younger patients, for patients on glucocorticoids, and in Canada versus the United States. During the COVID‐19 pandemic, patients with vasculitis have high levels of concern and exhibit potentially harmful health‐related behaviors. Health care use varies across different demographic groups and geographic regions. Specific strategies are warranted to facilitate engagement of these patients with the health care system during the pandemic.
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