Planning for the future: Exploring the experiences of older carers of adult children with a learning disability
Planning for the future: Exploring the experiences of older carers of adult children with a learning disability
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DOI：
10.1111/bld.12279
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发表时间：
2019-09-01
影响因子：
1.5
通讯作者：
Mansfield, Paul
中科院分区：
文献类型：
--
作者：
Deville, Jane;Davies, Helen;Mansfield, Paul
有大量有学习障碍的成年人与父母住在一起，并由父母照顾。有必要采取干预措施，支持老年护理人员发挥护理作用，并为他们不再能够继续护理的时间做好计划。这项研究调查了英格兰当地的一项支持服务，旨在支持55岁以上的照顾者，他们有一个有学习障碍的成年孩子住在家里。12名护理人员接受了单独采访。这项研究强调了老年家庭照顾者未得到满足的需求，并从照顾者的角度展示了支持的价值。背景有相当数量的成年人有学习障碍，他们与父母住在一起并由父母照顾。迫切需要采取干预措施，以支持老年父母照顾者发挥其作用，并为他们无法继续照顾的时候做好计划。本文报道的经验，年长的父母照顾者已经收到的干预，以支持未来的规划，在英格兰的农村地区，提供给老年照顾者的成年子女有学习障碍。方法采用半结构式访谈（n = 12）进行主题分析。结果确定了四个主题：（a）照顾者的情感需求，（B）未来规划，（c）获得其他服务和资源，（d）与成人护理服务的联系。照顾者欢迎干预的灵活性及其对支持他们的重点，减轻他们的孤立感。结论研究强调了老年家庭照顾者未满足的需求，并显示了从照顾者的角度来看，量身定制的支持的价值。研究结果有影响的国家社会关怀提供照顾者的成年儿童在农村地区的学习障碍。
Accessible summaryThere are a large number of adults with learning disabilities who live with and are cared for by their parents. There is a need for interventions to support older carers with their caring role and to plan for a time when they can no longer continue caring. This research looked at a local support service in England that aimed to support carers over 55 who had an adult child with a learning disability living at home. Twelve carers were interviewed individually. The study highlights the unmet needs of older family carers and shows the value of support from a carer perspective. Background There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers who have been in receipt of an intervention to support future planning, in a rural part of England, delivered to older carers of their adult children with learning disabilities. Methods Semi-structured carer interviews (n = 12) were conducted and analysed thematically. Results Four themes were identified (a) emotional needs of carer, (b) future planning, (c) accessing other services and resources and (d) links to adult care services. Carers welcomed the flexibility of the intervention and its focus on support for them, relieving their sense of isolation. Conclusions The research highlights the unmet needs of older family carers and shows the value of tailored support from a carer perspective. The findings have implications for national social care provision delivered to carers of adult children with learning disabilities in rural areas.