Self-determination in young adults with autism spectrum disorder
Self-determination in young adults with autism spectrum disorder
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DOI：
10.1177/1362361319877329
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发表时间：
2019-09-27
期刊：
影响因子：
5.2
通讯作者：
Coleman, Ann
中科院分区：
文献类型：
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作者：
Cheak-Zamora, Nancy C.;Maurer-Batjer, Anna;Coleman, Ann
患有自闭症谱系障碍的年轻人是所有年轻人中独立性最低的。自我决定技能帮助患有自闭症谱系障碍的年轻人做出选择，设定目标，并协助解决问题，自我监督和自我倡导。这些技能帮助患有自闭症谱系障碍的年轻人发展自主性和独立性。不幸的是，很少有研究调查自闭症群体中的自我决定，以及是什么促进了自闭症谱系障碍年轻人的自我决定。这项研究考察了患有自闭症谱系障碍的年轻人是如何自我决定的，以及哪些特征可能会提高自我决定能力。研究人员要求16-25岁患有自闭症谱系障碍的年轻人的照顾者完成一项调查，内容涉及他们的年轻人的自我决定技能以及自我决定在家中得到促进的频率。照顾者报告说，他们为患有自闭症谱系障碍的年轻人提供了在家里自我决定的机会，但他们的自闭症谱系障碍年轻人在自我决定技能测试中得分很低。患有自闭症谱系障碍并伴有智力残疾或与其自闭症谱系障碍相关的严重症状的年轻人与没有智力残疾且症状较少或较严重的年轻人相比，在总体自决方面存在显著差异。研究结果显示，自我决定技能的培养出现了问题。患有智力残疾或严重症状的自闭症谱系障碍的年轻人在自我决定方面存在显著差异。这些发现表明，目前对自我决定的促进并不能满足患有自闭症谱系障碍的年轻成年人的需要。未来的干预措施必须确定是什么支持患有自闭症谱系障碍的年轻人利用这些机会在日常生活中独立和行使自主权。
Lay abstract Young adults with autism spectrum disorder have some of the lowest rates of independence of all young adults. Self-determination skills help young adults with autism spectrum disorder make choices, set goals, and assist in problem-solving, self-monitoring, and self-advocating. These skills assist young adults with autism spectrum disorder in developing autonomy and independence. Unfortunately, few studies examine self-determination within the autistic community and what promotes self-determination in young adults with autism spectrum disorder. This study examined how self-determined young adults with autism spectrum disorder and what characteristics might improve self-determination. Caregivers of young adults with autism spectrum disorder, 16-25 years, were asked to complete surveys about their young adults' self-determination skills and how often self-determination was promoted at home. Caregivers reported they provided opportunities for the young adults with autism spectrum disorder to be self-determinate at home but that their young adults with autism spectrum disorder scored low on the self-determination skills measure. Young adults with autism spectrum disorder with an intellectual disability or severe symptoms related to their autism spectrum disorder experience significant disparities in overall self-determination compared to those without an intellectual disability and less frequent or severe symptoms. Findings show a breakdown in self-determination skill-building. Young adults with autism spectrum disorder with an intellectual disability or severe symptomology experienced significant disparities in self-determination. These findings show that the current promotion of self-determination is not meeting the needs of young adults with autism spectrum disorder. Future interventions must identify what supports young adults with autism spectrum disorder need to capitalize on these opportunities to be independent and exert autonomy in their daily lives.