Psychosocial impacts on caregivers of people living with AIDS
Psychosocial impacts on caregivers of people living with AIDS
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DOI：
10.1080/09540120500456565
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发表时间：
2006-04-01
影响因子：
1.7
通讯作者：
Orner, P
中科院分区：
文献类型：
--
作者：
Orner, P
据估计，到2010年，将有多达600万南非人感染艾滋病毒。与此同时，公共卫生保健资源过度紧张，社区和家庭在提供护理方面承担了更多的责任。然而，在南非，很少有工作调查对照顾者可能产生的心理社会影响。本研究调查了家庭层面的社会心理影响，涉及性别、规划和政策影响。与艾滋病患者（PWA）的主要照顾者进行了45次深入访谈。参与者是采用有目的和滚雪球抽样的方式招募的。43名答复者是妇女，这表明性别是这方面的一个重要问题。数据是用扎根理论的方法分析的。照料工作对照料者提出了相当大的要求，支助不足、赤贫和照料其他家庭成员的额外责任加剧了这种要求。缺乏基本资源是普遍和长期的，护理对就业和社会生活产生负面影响。对照顾者的耻辱和偏见很常见，并加剧了压力水平。对从各种来源获得的支助的评估差别很大。缺乏支持常常使人衰弱。感到受到支持的受访者将这种支持与改善的社会心理状况联系起来。概述了关于家庭护理政策的建议。
Estimates show that by 2010 up to six million South Africans will be HIV-infected. Simultaneously, public health care resources are overstretched and communities and families are taking more responsibility for providing care. However, little work in South Africa has investigated the possible psychosocial impacts on caregivers. This study investigates psychosocial impacts at household level with reference to gender, programme, and policy implications. Forty-five in-depth interviews were held with primary caregivers of people living with AIDS (PWA). Participants were recruited using purposive and snowball sampling. Forty-three respondents were women, signifying that gender is an important issue in this context. Data were analysed using a grounded theory approach. Care giving placed considerable demands on caregivers, which was exacerbated by insufficient support, dire poverty and the added responsibilities of caring for other household members. Lack of basic resources was common and chronic, and care giving impacted negatively on employment and social life. Stigma and prejudice towards caregivers was common and exacerbated stress levels. Assessment of support received from various sources ranged widely. The lack of support was often debilitating. Respondents who felt supported linked this support to improved psychosocial status. Recommendations for policy on home-based care are outlined.