Vulval Skin Conditions: Disease Activity and Quality of Life
Vulval Skin Conditions: Disease Activity and Quality of Life
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DOI：
10.1097/lgt.0b013e3182652450
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发表时间：
2013-04-01
影响因子：
3.7
通讯作者：
Littlewood, Sheelagh
中科院分区：
文献类型：
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作者：
Lawton, Sandra;Littlewood, Sheelagh
Objective.众所周知，慢性外阴皮肤病会导致生活质量显著下降。存在经验证的量表来衡量一般皮肤病的疾病影响;然而，没有一个是专门用来评估外阴疾病的。本研究的目的是确定哪些症状和方面的生活是重要的女性外阴皮肤病，并评估其有用性，在制定一项评估措施，监测疾病活动和生活质量的女性外阴皮肤病。参与者是在三级转诊中心的外阴皮肤科专科诊所就诊的女性患者。10名患有各种外阴皮肤病的患者接受了采访，以获得他们与外阴皮肤病一起生活的经验。使用定性的半结构化访谈，患者被问及开放式的问题，他们的疾病，影响他们的方面。其中包括：日常活动和社会活动，身体功能，性活动，流动性，关系，并了解他们的外阴状况。数据被记录、转录，然后按主题进行分析，涉及生活质量和症状的各个方面。根据确定的共同主题呈现结果，特别是身体症状、身体形象、疾病对性和身体功能的影响、影响日常活动的问题以及获得医疗服务时的旅程。这项定性研究增加了证据表明，慢性外阴疾病是痛苦的，并导致显着的发病率。它进一步强调了需要设计一个有效的问卷，可以在临床实践中使用，特别是在疾病的影响和生活质量。它只会加强临床咨询和促进针对疾病和个人的讨论。
Objective. Chronic vulval skin conditions are known to cause a significant reduction in the quality of life. Validated scales exist to measure the disease impact of general dermatologic conditions; however, none have been specifically derived to assess vulval disease. This study aimed to identify what symptoms and aspects of their lives are important for women with vulval skin conditions and to assess their usefulness in developing an assessment measure for monitoring disease activity and quality of life in women with vulval skin conditions.Materials and Methods. Participants were female patients attending a specialist vulval dermatology clinic at a tertiary referral center. Ten patients with a variety vulval skin conditions were interviewed to gain their experiences of living with a vulval skin condition. Using qualitative semistructured interviews, patients were asked open-ended questions about aspects of their disease that have affected them. These included the following: daily activities and social activities, physical functions, sexual activities, mobility, relationships, and an understanding of their vulval condition. Data was recorded, transcribed, and then analyzed thematically with all aspects regarding quality of life and symptoms identified.Results. Results are presented according to common themes identified, specifically physical symptoms, body image, the impact of the condition on sexual and physical function, issues affecting daily activities, and the journey traveled when accessing medical care.Conclusions. This qualitative study adds to the evidence that chronic vulval conditions are distressing and cause significant morbidity. It highlights further the need to devise a validated questionnaire which can be used in clinical practice looking specifically at disease impact and quality of life. It can only enhance the clinical consultation and facilitate discussion which is disease and person specific.