Is psychiatric research stigmatized? An experimental survey of the public

Is psychiatric research stigmatized? An experimental survey of the public
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DOI:
10.1093/schul/sbj003
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发表时间:
2006-01-01
影响因子:
6.6
通讯作者:
Kim, SYH
Kim, SYH
中科院分区:
医学1区
文献类型:
--
作者:
Muroff, JR;Hoerauf, SL;Kim, SYH

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虽然决策能力丧失可能是由各种医疗条件引起的,但由于精神疾病而导致的能力丧失往往在研究伦理政策辩论中被挑出来进行审查。我们评估了是否存在对精神疾病研究的普遍歧视性看法,如果存在,则旨在描述这种看法的性质。我们对公众进行了一次实验性的随机互联网调查。我们通过网络调查小组招募了3140名成年人,对少数民族和老年人进行了过度抽样。通过将受访者随机分配到7个基于网络的实验场景中的1个来比较允许医学与精神疾病研究的意愿,这些场景描绘了被考虑参与研究的主题。受访者更愿意允许研究与医学疾病比精神疾病的主题,即使在道德相关的因素是平等的。这种差异是通过受访者倾向于认为精神病患者比医学疾病患者更没有决策能力,即使他们被告知描绘的主题实际上是有能力的。对精神疾病研究的歧视性看法存在,并受到对精神疾病和决策能力的过时观点的影响。政策制定者和机构审查委员会成员可能需要在其审议工作中防范其影响。
Although decisional incapacity can be caused by various medical conditions, incapacity due to mental illness is often singled out for scrutiny in research ethics policy debates. We assessed whether there is a general discriminatory perception of mental illness research and, if so, aimed to characterize the nature of that perception. We conducted an experimental, randomized Internet survey of the general public. We recruited 3140 adults through a web-research survey panel, with oversampling of racial and ethnic minorities and the elderly. Willingness to allow medical versus mental illness research was compared by randomly assigning the respondents to 1 of 7 web-based experimental scenarios depicting a subject being considered for research participation. Respondents were more willing to allow research with medically ill than the mentally ill subjects, even when ethically relevant factors were equal. This difference was mediated through the respondents' tendency to view mentally ill subjects as more decisionally incapable than medically ill subjects, even when they were told that the subjects portrayed were in fact competent. Discriminatory perception of mental illness research exists and is mediated by an outdated view of mental illness and decisional capacity. Policymakers and institutional review board members may need to guard against its influence in their deliberations.