Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives.
Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives.
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DOI：
10.1002/ppul.21164
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发表时间：
2010-02
影响因子：
3.1
通讯作者：
Quittner, Alexandra L.
中科院分区：
文献类型：
--
作者：
Marciel, Kristen K.;Saiman, Lisa;Quittell, Lynne M.;Dawkins, Kevin;Quittner, Alexandra L.
囊性纤维化（CF）患者的治疗方案耗时且复杂，导致依从率始终较低。到目前为止，很少有研究评估创新技术，以提高这一人群的依从性。目前CF患者的感染控制指南旨在尽量减少潜在病原体的患者间传播。因此，干预措施必须避免面对面的接触，必须单独进行，这限制了同侪支持的机会。本研究旨在开发和评估一种支持网络的手机，CFFONE™，旨在提供CF信息和社会支持，以提高青少年CF的依从性。由医疗保健专业人员（n = 17）、11-18岁的CF青少年（n = 12）、21-36岁的CF成人（n = 6）、CF青少年的父母（n = 12）和技术专家（n = 8）评价CFFONE™的可接受性、可行性和效用。青少年还测试了CFFONE™的原型（n = 9）。收集了定性和定量数据。医疗保健专业人员的焦点小组数据表明需要这种干预，并表明CFFONE™可能会提高知识和社会支持，并在一定程度上可能提高依从性。青少年、成年人和父母都认为CFFONE™可能提高依从性。技术专家对原型设计和格式进行了适当的评价。目前的研究提供了一些关键利益相关者的支持，这种干预措施，以提高青少年CF的依从性。接下来的步骤包括CFFONE™的疗效和安全性的多中心试验。
Treatment regimens for patients with cystic fibrosis (CF) are time-consuming and complex, resulting in consistently low adherence rates. To date, few studies have evaluated innovative technologies to improve adherence in this population. Current infection control guidelines for patients with CF seek to minimize patient-to-patient transmission of potential pathogens. Thus, interventions must avoid face-to-face contact and be delivered individually, limiting opportunities for peer support. This study aimed to develop and assess a web-enabled cell phone, CFFONE™, designed to provide CF information and social support to improve adherence in adolescents with CF. The acceptability, feasibility, and utility of CFFONE™ were evaluated with health care professionals (n = 17) adolescents with CF aged 11–18 years old (n = 12), adults with CF aged 21–36 years old (n = 6), parents of adolescents with CF (n = 12), and technology experts (n = 8). Adolescents also tested a prototype of CFFONE™ (n = 9). Qualitative and quantitative data were collected. Focus group data with health care = professionals indicated a need for this intervention, and indicated that CFFONE™ would be likely to improve knowledge and social support, and somewhat likely to improve adherence. Adolescent, adults, and parents all rated CFFONE™ as likely to improve adherence. Technology experts rated the prototype design and format as appropriate. The current study provided some support from key stakeholders for this intervention to improve adherence in adolescents with CF. Next steps include a multi-center trial of the efficacy and safety of CFFONE™.
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影响因子：
3.6
作者：
Davis, MA;Quittner, AL;Yang, MCK
通讯作者：
Yang, MCK
影响因子：
3.6
作者：
Modi, Avani C.;Quittner, Alexandra L.
通讯作者：
Quittner, Alexandra L.
影响因子：
7.4
作者：
Kollmann, Alexander;Riedl, Michaela;Ludvik, Bernhard
通讯作者：
Ludvik, Bernhard
DOI：
10.1097/00004703-199910000-00008
发表时间：
1999-10-01
影响因子：
2.4
作者：
Ievers, CE;Brown, RT;Lambert, RG
通讯作者：
Lambert, RG
影响因子：
5.7
作者：
Rosland, Ann-Marie;Kieffer, Edith;Heisler, Michele
通讯作者：
Heisler, Michele