Recruitment and retention in randomized controlled trials with urban American Indian/Alaska Native adolescents: Challenges and lessons learned.

Recruitment and retention in randomized controlled trials with urban American Indian/Alaska Native adolescents: Challenges and lessons learned.
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DOI:
10.1177/1740774520971774
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发表时间:
2021-03
期刊:
Clinical trials (London, England)
影响因子:
--
通讯作者:
D'Amico EJ
D'Amico EJ
中科院分区:
其他
文献类型:
--
作者:
Dickerson DL;Parker J;Johnson CL;Brown RA;D'Amico EJ

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虽然大多数美洲印第安人/阿拉斯加原住民居住在城市地区,但很少有随机对照试验分析这一人群的文化中心物质使用预防干预措施。我们描述了招募和保留城市美国印第安人/阿拉斯加原住民青少年进入随机对照试验的方法,该试验的重点是测试物质使用预防干预对这一人群的潜在益处。我们还报告了在招募和留住参与者方面遇到的挑战以及应对这些挑战的策略。数据收集时间为2014年8月至2017年10月。我们与加州不同城市的两个社区组织合作。我们利用来自社区的美国印第安人/阿拉斯加原住民招聘人员,在社区组织中放置传单,并要求组织在其网站和社交媒体网站上发布传单。我们还为参与者提供礼品卡。我们最初的招募和保留模式相当成功;然而,我们遇到了五个主要挑战:1)交通,2)增加信任和兴趣,3)增加研究地点,4)让人们了解项目,5)让年轻人完成后续调查。为克服交通挑战而采取的战略包括缩短会议次数,在周末和工作日提供会议,增加公共汽车代币和交通选择。我们从美国印第安人/阿拉斯加原住民社区雇佣了更多的员工,从我们以前建立的关系中增加了更多的研究网站,并且更加积极地在美国印第安人/阿拉斯加原住民社区宣传该项目。我们还利用更多的实地跟踪,并通过电子邮件和邮寄调查邀请,以达到更多的参与者进行后续调查。由于我们的努力,我们几乎能够达到我们最初的招聘和保留目标。虽然我们的研究团队以前与各种城市美国印第安人/阿拉斯加原住民社区建立了关系,但我们在研究中遇到了各种招聘和保留挑战。然而,通过确定挑战和采用文化上适当的策略,我们能够收集有关药物使用预防干预对城市美国印第安人/阿拉斯加原住民青少年的潜在有效性的宝贵数据。这项研究的结果有助于制定潜在的成功策略,成功地招募和留住城市美国印第安人/阿拉斯加土著青少年在随机对照试验。
Although the majority of American Indians/Alaska Natives reside in urban areas, there are very few randomized controlled trials analyzing culturally centered substance use prevention interventions for this population. We describe methods employed to recruit and retain urban American Indian/Alaska Native adolescents into a randomized controlled trial, which was focused on testing the potential benefits of a substance use prevention intervention for this population. We also report challenges encountered in recruitment and retention of participants and strategies employed addressing these challenges. Data collection occurred from August 2014 to October 2017. We partnered with two community-based organizations in different cities in California. We utilized American Indian/Alaska Native recruiters from communities, placed flyers in community-based organizations, and asked organizations to post flyers on their web and social media sites. We also offered gift cards for participants. Our initial recruitment and retention model was moderately successful; however, we encountered five main challenges: 1) transportation, 2) increasing trust and interest, 3) adding research sites, 4) getting the word out about the project, and 5) getting youth to complete follow-up surveys. Strategies employed to overcome transportation challenges included shortening the number of sessions, offering sessions on both weekends and weekdays, and increasing bus tokens and transportation options. We hired more staff from American Indian/Alaska Native communities, added more research sites from our previously established relationships, and were more pro-active in getting the word out on the project in American Indian/Alaska Native communities. We also utilized more field tracking, and emailed and mailed survey invitations to reach more participants for their follow-up surveys. Because of our efforts, we were nearly able to reach our initial recruitment and retention goals. Although our research team had previously established relationships with various urban American Indian/Alaska Native communities, we encountered various recruitment and retention challenges in our study. However, by identifying challenges and employing culturally appropriate strategies, we were able to collect valuable data on the potential effectiveness of a substance use prevention intervention for urban American Indian/Alaska Native adolescents. Findings from this study assist toward the development of potentially successful strategies to successfully recruit and retain urban American Indian/Alaska Native adolescents in randomized controlled trials.
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