Falling in Parkinson's disease: the impact on informal caregivers
Falling in Parkinson's disease: the impact on informal caregivers
复制标题
DOI：
10.1080/09638280400000195
复制
发表时间：
2004-12-02
影响因子：
2.2
通讯作者：
Murphy, C
中科院分区：
文献类型：
--
作者：
Davey, C;Wiles, R;Murphy, C
目的：本研究的目的是探讨反复跌倒的帕金森病患者的非正式照顾者的看法和经验。方法：如果个人是帕金森病 (PD) 患者的非正式照顾者，且在过去 12 个月内经历过 1 次以上跌倒，则邀请他们参加本研究。使用半结构化访谈计划采访参与者，了解他们处理跌倒的经验。使用主题分析对访谈数据进行转录和分析。结果：14 名护理人员（11 名女性）参与了该研究。他们都是患有帕金森病的反复跌倒者的婚姻伴侣。参与者的平均年龄为 69.9 岁（44 - 79 岁）。他们的伴侣患帕金森病的时间平均为 16.7 年。对访谈数据的分析得出了六个主要主题，其中四个与跌倒管理直接相关（跌倒；跌倒对帕金森病患者的后果；护理人员跌倒的经历；跌倒对护理人员的后果）。大多数照顾者都害怕他们的配偶跌倒。他们使用了多种方法将配偶从地板上扶起来，但结果常常导致自己受伤。护理人员强调了他们提供的高水平护理以及这种情况对他们的社会和心理影响。他们在照顾配偶方面获得的帮助有限，并且关于跌倒或一般疾病的信息很少。结论：这项研究中的护理人员对自己的角色感到没有准备好，并表示需要更多的支持和建议，特别是在管理跌倒方面。
Purpose: The aim of this study was to explore the views and experiences of the informal caregivers of repeat fallers with Parkinson's disease.Method: Individuals were invited to participate in this study if they were the informal caregiver of a person with Parkinson's disease (PD) who had experienced more than one fall in the previous 12 months. Participants were interviewed about their experience of managing falls using a semi-structured interview schedule. Interview data were transcribed and analysed using thematic analysis.Results: Fourteen caregivers ( 11 female) participated in the study. All were marital partners of a repeat faller with Parkinson's disease. The average age of the participants was 69.9 years ( 44 - 79). Their partners had had PD for an average of 16.7 years. Six major themes emerged from the analysis of the interview data, four directly related to falls management ( the falls; consequences of the falls for the person with PD; caregivers' experiences of falls; consequences of falls for the caregiver). The majority of caregivers were frightened about their spouse falling. They used a number of methods of getting their spouse up from the floor but often injured themselves as a consequence. Caregivers highlighted the high level of care they provided and the social and psychological impact of the condition on them. They received limited help in looking after their spouse and little information about falls or about the disease in general.Conclusion: Caregivers in this study felt unprepared for their role and expressed a need for more support and advice, especially about managing falls.