The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy.
The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy.
复制标题
在膀胱切除术后 6 个月对膀胱癌幸存者进行的调查中，多次招募接触对反应率和缺失数据模式的影响。
DOI：
10.1007/s11136-019-02379-3
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发表时间：
2020
期刊：
影响因子：
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通讯作者：
McMullen,CarmitK
中科院分区：
文献类型：
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作者：
Bulkley,JoannaE;O'Keeffe-Rosetti,Maureen;Wendel,ChristopherS;Davis,JamesV;Danforth,KimN;Harrison,TeresaN;Kwan,MarilynL;Munneke,Julie;Brooks,Neon;Grant,Marcia;Leo,MichaelC;Banegas,Matthew;Weinmann,Sheila;McMullen,CarmitK
膀胱癌生活质量研究收集了膀胱切除术后膀胱癌幸存者的详细和敏感的患者报告结果，当时参与调查研究可能会带来负担。本文介绍了研究招募方法，并检查的响应率和模式的缺失data.MethodsDetailed调查集中在生活质量，医疗保健决策，和医疗费用邮寄给患者后5-7个月cycloplasty。我们进行了多达10次的后续招聘电话。我们分析了调查完成率在每次接触人口统计学和临床特征，以及跨调查内容areas.ResultsThe整体响应率为71%（n= 269/379）的缺失数据的模式。这在患者的临床特征中是一致的;与非西班牙裔白色患者相比，70岁以上患者的缓解率显著较高，种族和少数民族患者的缓解率显著较低。每一次后续接触都导致至少10%的边际调查完成率。大多数内容领域的数据缺失率都很低，即使是潜在的敏感问题也是如此。率的缺失数据显着不同性别，年龄，和种族/ethnication.ConclusionsDespite的努力，需要参与研究，这一人口的癌症幸存者愿意分享详细的信息，生活质量，医疗保健决策，和费用，不久后，重大癌症手术。更多的接触对增加参与是有效的。反应模式因人种/种族和其他人口统计学因素而异。我们的数据收集方法表明，在这个充满挑战的时期收集详细的患者报告结果是可行的。
PurposeThe Bladder Cancer Quality of Life Study collected detailed and sensitive patient-reported outcomes from bladder cancer survivors in the period after bladder removal surgery, when participation in survey research may present a burden. This paper describes the study recruitment methods and examines the response rates and patterns of missing data.MethodsDetailed surveys focusing on quality of life, healthcare decision-making, and healthcare expenses were mailed to patients 5–7 months after cystectomy. We conducted up to 10 follow-up recruitment calls. We analyzed survey completion rates following each contact in relation to demographic and clinical characteristics, and patterns of missing data across survey content areas.ResultsThe overall response rate was 71% (n= 269/379). This was consistent across patient clinical characteristics; response rates were significantly higher among patients over age 70 and significantly lower among racial and ethnic minority patients compared to non-Hispanic white patients. Each follow-up contact resulted in marginal survey completion rates of at least 10%. Rates of missing data were low across most content areas, even for potentially sensitive questions. Rates of missing data differed significantly by sex, age, and race/ethnicity.ConclusionsDespite the effort required to participate in research, this population of cancer survivors showed willingness to share detailed information about quality of life, health care decision-making, and expenses, soon after major cancer surgery. Additional contacts were effective at increasing participation. Response patterns differed by race/ethnicity and other demographic factors. Our data collection methods show that it is feasible to gather detailed patient-reported outcomes during this challenging period.