Quality of life among childhood leukemia patients.
Quality of life among childhood leukemia patients.
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DOI：
10.1177/1043454203253969
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发表时间：
2003-07-01
期刊：
影响因子：
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通讯作者：
Hutto, C J
中科院分区：
文献类型：
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作者：
Hicks, Julie;Bartholomew, Joy;Hutto, C J
这项定性描述性研究的目的是让儿童白血病患者用自己的话来描述他们的生活质量（QoL）。这些个人账户为医护人员提供了一个了解白血病对这些儿童影响的机会。共有13名儿童参加了三次焦点小组访谈。他们的年龄范围为5至9岁，要么停止治疗，要么完成了至少6个月的治疗。四个半结构化的面试问题被用来指导面试。每个问题都与先前研究中确定的对生活质量有影响的领域相关。因此，本研究探讨的领域是（a）身体健康和症状，（B）心理健康，（c）社会健康，（d）精神健康。确定了五个主题：（a）疲劳，（B）对活动的影响，（c）药物和治疗效果，（d）关系变化，和（e）脱发。
The purpose of this qualitative descriptive study was to allow childhood leukemia patients to describe their quality of life (QoL) in their own words. These personal accounts provide an opportunity for health care personnel to understand the impact that leukemia has on these children. A total of 13 children in three focus group interviews participated. They ranged in age from 5 to 9 years and were either off therapy or had completed at least 6 months of treatment. Four semistructured interview questions were used to guide the interviews. Each question related to a domain identified in previous research as having an effect on QoL. Thus, the areas explored in this study were (a) physical well-being and symptoms, (b) psychological well-being, (c) social well-being, and (d) spiritual well-being. Five themes were identified: (a) fatigue, (b) the effect on activities, (c) medication and treatment effects, (d) relationship changes, and (e) hair loss.